Young-onset dementia

5. Other useful organisations

British Institute of Learning Disabilities (BILD)

Birmingham Research Park

97 Vincent Drive

Edgbaston

Birmingham B15 2SQ

T 0121 415 6960

E enquiries@bild.org.uk

W www.bild.org.uk

Organisation that works to improve the lives of people with disabilities. Provides a range of information in print and online.

Citizens Advice Bureau

Various locations

W www.citizensadvice.org.uk

Your local Citizens Advice Bureau (CAB) can provide information and advice in confidence or point you in the right direction. To find your nearest CAB, look in the phone book, ask at your local library or look on the Citizens Advice website (above). Opening times vary.

CJD Support Network

PO Box 346

Market Drayton TF9 4WN

T 01630 673973 (helpline)

E info@cjdsupport.net

W www.cjdsupport.net

Supports people with prion diseases, including forms of Creutzfeldt-Jakob disease (CJD). Provides a range of information on the various forms of prion disease, and works with professionals to improve the level of care provided for people with these conditions.

Disability Benefits Helpline

For Disability living allowance

T 0345 712 3456

(free helpline open 8am to 6pm weekdays)

0345 722 4433 (textphone)

For Attendance allowance

T 0345 605 6055

(free helpline open 8am to 6pm weekdays)

0345 604 5312 (textphone)

For Personal independence payment

T 0345 850 3322

(free helpline open 8am to 6pm weekdays)

0345 601 6677 (textphone)

Helpline for advice or information about claims for Disability Living Allowance, Attendance Allowance or Personal Independence Payment.

Rare Dementia Support

T 07592 540555

W www.ucl.ac.uk/drc/support-groups

Runs specialist support group services for individuals living with, or affected by, one of five rare forms of dementia: frontotemporal dementia, posterior cortical atrophy, primary progressive aphasia, familial Alzheimer's disease and familial frontotemporal dementia.

The Lewy Body Society

Hudson House

8 Albany St

Edinburgh EH1 3QB

T 0131 473 2385

E info@lewybody.org

W www.lewybody.org (includes contact form)

Charity that aims to raise awareness of DLB for the general public and educate those in the medical profession and decision-making positions about all aspects of the disease. They also support research into the disease.

Young Dementia UK

PO Box 315

Witney

Oxfordshire OX28 1ZN

T 01993 776295

E mail@youngdementiauk.org

W www.youngdementiauk.org

National information and support charity focusing specifically on young-onset dementia.Created with and for younger people, families, friends and supporters.

More information and resources

Last reviewed: October 2015

Next review due: October 2018

Reviewed by: Dr Ayesha Bangash, registrar in Old Age Psychiatry and Dr Karim Saad, Consultant in Old Age Psychiatry, Coventry and Warwickshire Partnership NHS Trust and Jill Walton, Nurse Advisor, Dementia Research Centre, UCL.

This information has also been reviewed by people affected by dementia. A list of sources is available on request from publications@alzheimers.org.uk

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