Campaign with us

Join our campaigns and help us fix the broken dementia care system. We want to make sure that every person affected by dementia gets the care and support they deserve, when they need it.

Why campaign with us?

We are standing with people affected by dementia to end the unfairness in the social care system.

Our Fix Dementia Care campaign is directly rooted in the experiences of people affected by dementia. The work we do with these families gives us the understanding, expertise and authority to campaign alongside them.

What does campaigning involve?

Campaigning with us means helping to influence the people that make decisions across the UK. We want people affected by dementia to get the care they deserve, when they need it. There are lots of ways you can get involved:

  • If you only have one minute – sign up as a campaigner to stay up to date with the latest news and support future campaign actionsIf 
  • If you have a little bit longer – share your story with us to inform and shape our campaigns

The problem with dementia care

Over the past two decades, the average cost of a nursing home place has almost doubled and is now nearing £1,000 a week. The typical cost of dementia care is £100,000.

At Alzheimer’s Society, we regularly hear from people who have spent all of their life savings on care. Due to the complexity of the condition, the cost of dementia care is on average 15 per cent more expensive than other types of social care – we call this the ‘Dementia Penalty’.

The NHS is committed to the principle of access based on clinical need, not an individual’s ability to pay. It's time that people with dementia get the same treatment.

Sharad's story

'We were told we would have to fight to get dad the right support. But nothing prepared us for how hard it would be.

I don’t think dementia ever affects just one person. It affects everyone close to them too – their family, their friends. And my experience is that the care system hasn’t helped any of us' 

Sharad sat on his sofa

Sharad and his daughter Nimisha have found dealing with the care system distressing. Read their story.

Help us Fix Dementia Care

People like Sharad need a social care system that guarantees quality care and support, when they need it. Support our campaign to end the 'Dementia Penalty'. 

Support people like Sharad