Young-onset dementia - more resources

Other organisations that may be helpful for younger people with dementia.

Useful organisations 

Advisory, Conciliation and Arbitration Service (ACAS)

0300 123 1190 (Helpline, 8am–6pm Monday–Friday)
www.acas.org.uk

ACAS can give you advice about workplace situations. Its website has guidance and publications or you can phone the helpline for information and advice.

British Association for Counselling and Psychotherapy (BACP)

01455 833300
[email protected]
www.bacp.co.uk

The British Association for Counselling and Psychotherapy is the professional association for members of the counselling professions in the UK. You can search for accredited therapists in your area.

Citizens Advice

03444 111 444 (Adviceline, 9am–5pm Monday–Friday)
www.citizensadvice.org.uk

Citizens Advice provides free, independent, confidential and impartial advice to everyone on their rights and responsibilities.

Equality Advisory and Support Service

0808 800 0082 (Helpline, 9am–7pm Monday–Friday, 10am–2pm Saturday)
www.equalityadvisoryservice.com

The EASS helpline can give you free advice and support.

Equality Commission for Northern Ireland

028 90 500 600 (Helpline, 10am–4pm Monday–Friday)
[email protected]
www.equalityni.org

The Equality Commission for Northern Ireland has a helpline where you can get free advice and support.

GOV.UK

www.gov.uk

The UK government website, which includes information about benefits and how to contact Driver and Vehicle Licensing Agency (DVLA) and Driver and Vehicle Agency (DVA).

NI Direct

www.nidirect.gov.uk

The website of the Northern Ireland government, which includes information about benefits available in Northern Ireland and how to contact Driver and Vehicle Agency (DVA).

Rare Dementia Support (RDS)

[email protected]
www.raredementiasupport.org

RDS works to support people affected by five rare dementia conditions: familial Alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA) and primary progressive aphasia (PPA).

The Lewy Body Society

01942 914 000
[email protected]
www.lewybody.org
The Lewy Body Society aims to fund research into dementia with Lewy bodies and to raise awareness of the condition.

YoungDementia UK

01993 776295 (general enquiries)
www.youngdementiauk.org (includes an online contact form)

YoungDementia UK is the dedicated national charity for younger people with dementia and their families.

More information and resources

Last reviewed: January 2020
Next review due: December 2023

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.

Reviewed by: Professor Sebastian Crutch, Professor of Neuropsychology, Dementia Research Centre, University College London.

This factsheet has also been reviewed by people affected by dementia.

To give feedback on this factsheet, or for a list of sources, email [email protected]