Young-onset dementia - useful organisations

Other organisations that may be helpful for younger people with dementia.

Useful organisations

Advisory, Conciliation and Arbitration Service (ACAS)

Telephone
0300 123 1100 (Helpline, 8am–6pm Monday–Friday)

Website
www.acas.org.uk

ACAS can give you advice about workplace situations. Its website has guidance and publications or you can phone the helpline for information and advice.

British Association for Counselling and Psychotherapy (BACP)

Telephone
01455 833300 (10am–4pm Monday–Friday)

Email
[email protected]

Website
www.bacp.co.uk

BACP is the professional association for members of the counselling professions in the UK. You can search for accredited therapists in your area.

Citizens Advice

Telephone
0800 144 8848 (Adviceline England, 9am–5pm Monday–Friday)
0800 702 2020 (Advicelink Wales, 9am–5pm Monday–Friday)

Website
www.citizensadvice.org.uk

Citizens Advice provides free, independent, confidential and impartial advice to everyone on their rights and responsibilities.

Dementia UK

Telephone
0800 888 6678 (Admiral Nurse Dementia Helpline, 9am–9pm Monday–Friday, 9am–5pm Saturday and Sunday)

Email
[email protected]

Website
www.dementiauk.org

Dementia UK support and develop Admiral Nurses, who help people living with dementia stay independent for longer.

Equality Advisory and Support Service

Telephone
0808 800 0082 (Helpline, 9am–7pm Monday–Friday, 10am–2pm Saturday)

Website
www.equalityadvisoryservice.com

The EASS helpline can give you free advice and support.

Equality Commission for Northern Ireland

Telephone
028 90 500 600 

Email
[email protected]

Website
www.equalityni.org

The Equality Commission for Northern Ireland has a helpline where you can get free advice and support.

GOV.UK

Website
www.gov.uk

The UK government website, which includes information about benefits and how to contact Driver and Vehicle Licensing Agency (DVLA) and Driver and Vehicle Agency (DVA).

NI Direct

Website
www.nidirect.gov.uk

The website of the Northern Ireland government, which includes information about benefits available in Northern Ireland and how to contact Driver and Vehicle Agency (DVA).

Rare Dementia Support (RDS)

Telephone
020 3325 0828

Email
[email protected]

Website
www.raredementiasupport.org

RDS works to support people affected by five rare dementia conditions: familial Alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA) and primary progressive aphasia (PPA).

The Lewy Body Society

Telephone
01942 914 000

Email
[email protected]

Website
www.lewybody.org

The Lewy Body Society aims to fund research into dementia with Lewy bodies and to raise awareness of the condition.

Review information

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.

Reviewed by: Professor Sebastian Crutch, Professor of Neuropsychology, Dementia Research Centre, University College London.

To give feedback on this information, or for a list of sources, please email our Publications team at [email protected]

Think this page could be useful to someone? Share it:
  • Page last reviewed:
  • Next review due: