Young-onset dementia - useful organisations
Other organisations that may be helpful for younger people with dementia.
Advisory, Conciliation and Arbitration Service (ACAS)
0300 123 1100 (Helpline, 8am–6pm Monday–Friday)
ACAS can give you advice about workplace situations. Its website has guidance and publications or you can phone the helpline for information and advice.
British Association for Counselling and Psychotherapy (BACP)
01455 833300 (10am–4pm Monday–Friday)
BACP is the professional association for members of the counselling professions in the UK. You can search for accredited therapists in your area.
Citizens Advice provides free, independent, confidential and impartial advice to everyone on their rights and responsibilities.
0800 888 6678 (Admiral Nurse Dementia Helpline, 9am–9pm Monday–Friday, 9am–5pm Saturday and Sunday)
Dementia UK support and develop Admiral Nurses, who help people living with dementia stay independent for longer.
Equality Advisory and Support Service
0808 800 0082 (Helpline, 9am–7pm Monday–Friday, 10am–2pm Saturday)
The EASS helpline can give you free advice and support.
Equality Commission for Northern Ireland
028 90 500 600
The Equality Commission for Northern Ireland has a helpline where you can get free advice and support.
The UK government website, which includes information about benefits and how to contact Driver and Vehicle Licensing Agency (DVLA) and Driver and Vehicle Agency (DVA).
The website of the Northern Ireland government, which includes information about benefits available in Northern Ireland and how to contact Driver and Vehicle Agency (DVA).
Rare Dementia Support (RDS)
020 3325 0828
RDS works to support people affected by five rare dementia conditions: familial Alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA) and primary progressive aphasia (PPA).
The Lewy Body Society
01942 914 000
The Lewy Body Society aims to fund research into dementia with Lewy bodies and to raise awareness of the condition.
Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.
Reviewed by: Professor Sebastian Crutch, Professor of Neuropsychology, Dementia Research Centre, University College London.
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