Frontotemporal dementia - other resources

Find out more about other organisations who can support people with frontotemporal dementia and those close to them.

Other useful organisations and information

Motor Neurone Disease Association

0808 802 6262 (helpline, 9am–5pm and 7pm–10.30pm Monday–Friday)
[email protected]

The Motor Neurone Disease Association funds and promotes research into motor neurone disease and provides support for people affected.

PSP Association

0300 011 0122
[email protected]

PSP Association is a charity offering advice, support and information to people living with progressive supranuclear palsy and corticobasal degeneration.

Rare Dementia Support

07341 776 317

Rare Dementia Support is a UK-based service that runs specialist support group services for individuals affected by rare forms of dementia.

Review details

Last reviewed: May 2020
Next review due: May 2023

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.

Reviewed by: Dr Matthew Jones, Consultant Neurologist and Honorary Senior Lecturer,
Salford Royal NHS Foundation Trust

This factsheet has also been reviewed by people affected by dementia.

To give feedback on this information, or for a list of sources, please email [email protected]

More practical and emotional support near you

There are dementia services and support groups in your area. Find out what's available where you are.

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