Frontotemporal dementia - more resources

Find out more about organisations who can help with a diagnosis of frontotemporal dementia.

Other useful organisations and information

Motor Neurone Disease Association

0808 802 6262 (helpline, 9am–5pm, 7pm–10.30pm, Monday–Friday)
[email protected]
www.mndassociation.org

MND Association funds and promotes research into motor neurone disease and provides support for people affected.

PSP Association

0300 011 0122
[email protected]
www.pspassociation.org.uk

PSP offers advice, support and information to people living with progressive supranuclear palsy and corticobasal degeneration. It also supports research into treatments and ultimately a cure for these conditions.

Rare Dementia Support

07341 776 317 (FTD information line)
www.raredementiasupport.org

Rare Dementia Support runs specialist support group services for individuals living with, or affected by, one of five rare forms of dementia: frontotemporal dementia, posterior cortical atrophy, primary progressive aphasia, familial Alzheimer’s disease and familial frontotemporal dementia.

Further information

Last reviewed: April 2016
Next review due: April 2019

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.

Reviewed by: Professor Jason Warren, Senior Clinical Fellow and Professor of Neurology and Jill Walton, Nurse Advisor, Rare Dementia Support, Dementia Research Centre, Institute of Neurology, University College London

To give feedback on this information, or for a list of sources, please email [email protected]

More practical and emotional support near you

There are dementia services and support groups in your area. Find out what's available where you are.

Further reading