Frontotemporal dementia (FTD) | Alzheimer's Society

'Some of my most treasured moments have been after her dementia diagnosis' - Carly's story

Carly Burne’s mother, Rose-Marie was diagnosed with Frontotemporal dementia in 2017. Despite the challenges of the past four years, Carly reflects on the positives – from finding the perfect care home for her mam, to strengthening their relationship.

08 Jul 2021

Real stories

Advice

Easy Read dementia factsheets

Our Easy Read factsheets about dementia are written for people with learning disabilities.

Research

Better understanding the role of a protein linked to frontotemporal dementia

Research project: Does Accumulation of POSH Mediate Aberrant Immune and Apoptotic Signalling Cascades Leading to Neuronal Dysfunction in Frontotemporal Dementia?

Real stories

Missing freedom: Cherishing every moment with Mum

After a year’s separation from his mum, the return of face-to-face care home visits means the world to Jamie Greaves.

01 June 2021

Real stories

Juggling work, home-schooling, and full-time dementia care with an unfair system

During coronavirus, Sara and her family had been caring for her dad, Brian, who has frontotemporal dementia (FTD), in addition to working and home-schooling. They have lived through the flawed care system and are now calling on Government to act.

26 April 2021

Research

Exploring the waste disposal system in brain cells and what it means for Alzheimer’s disease and Frontotemporal dementia

Research project: Investigating the relationship between autophagy and exosomal miRNA in Alzheimer's disease and frontotemporal dementia.

Research

5 reasons to share your research with a wider audience

Joanne Sharpe is a final year PhD student at the University of Manchester, who works with Dr Ryan West and Professor Stuart Pickering-Brown. Her research uses fruit fly models to investigate genetic (c9orf72) models of Frontotemporal dementia in the lab.

05 February 2021

Real stories

Finding a way: Making Dementia Friends while being a carer

Jeanne Pring, a Dementia Friends Champion in north London, tells us about supporting her mother-in-law and running information sessions through lockdown.

01 February 2021

News

Alzheimer’s Society comments on research suggesting apathy as possible predictor of frontotemporal dementia

A University of Cambridge-led study has indicated that apathy could be an early symptom of frontotemporal dementia and predict cognitive decline.

Real stories

Meet the researcher: Sarah Ryan

Meet Sarah Ryan, Alzheimer’s Society Junior Fellow at the University of Manchester.

01 December 2020

News

The Roads Not Taken: A film depicting a day in the life of a father with frontotemporal dementia

Sally Potter, the director of The Roads Not Taken, shares the inspiration behind her latest film. Sally hopes people affected by dementia will recognise the experiences portrayed, and the film will help to challenge assumptions about the condition.

11 September 2020

Real stories

Me, my mum and frontotemporal dementia

When Jess’s mum, Janice, was diagnosed with frontotemporal dementia (FTD), Jess struggled to find more information about the disease. Having found support through Alzheimer's Society and others, she hopes her personal story about FTD can help people in her position.

02 July 2020

Real stories

Every step counts: Memory Walk is a great opportunity to support each other

A supporter in Nottingham is taking part in Memory Walk again this year having seen the impact of dementia on her own family.

01 June 2020

'Some of my most treasured moments have been after her dementia diagnosis' - Carly's story

Easy Read dementia factsheets

Better understanding the role of a protein linked to frontotemporal dementia

Missing freedom: Cherishing every moment with Mum

Juggling work, home-schooling, and full-time dementia care with an unfair system

Exploring the waste disposal system in brain cells and what it means for Alzheimer’s disease and Frontotemporal dementia

5 reasons to share your research with a wider audience

Finding a way: Making Dementia Friends while being a carer

Alzheimer’s Society comments on research suggesting apathy as possible predictor of frontotemporal dementia

Meet the researcher: Sarah Ryan

The Roads Not Taken: A film depicting a day in the life of a father with frontotemporal dementia

Me, my mum and frontotemporal dementia

Every step counts: Memory Walk is a great opportunity to support each other

Useful links