Frontotemporal dementia (FTD) Topics InformationAdviceNewsReal storiesResearchSupport usDementia directory
Real stories Rachel's story: 'We were told we simply had to wait for a "crisis point".' When Rachel's dad Paul started acting differently, she and her sisters convinced him to visit his GP. Eventually, Paul was diagnosed with frontotemporal dementia (FTD) or Pick's disease. He now lives in a residential care home that suits his needs. 25 February 2020 3
Real stories ‘I just needed to know’ – Doctors told me I will develop dementia, now I’m doing everything to help fund a cure At 35, Hannah Mackay was told that she carries a rare gene which means she will go on to develop a form of Frontotemporal dementia. She explains why, for her, it was better to know, and how she’s now determined to raise funds for dementia research. 13 December 2019 0
Information Book group: The longest farewell by Nula Suchet Readers share their views about a real-life story of losing a partner to dementia, but also of finding unexpected love through the experience. 28 November 2019 0
News Mum, 35, unites with Alzheimer’s Society to find dementia cure through Memory Walk campaign after test heartache A mother of two young children joins Memory Walk to raise vital funds to beat dementia, after learning she will develop a rare inherited form of the condition.
Research What is the role of microglia in frontotemporal dementia? Research project: What role do microglia play in C9orf72-linked frontotemporal dementia?
Real stories Robert's story: Why I became a Research Network volunteer Robert cared for his mother, who had frontotemporal dementia, until she passed away. Here Robert shares why he's passionate about dementia research and hopes other carers will get involved, too. 26 March 2019 8
Research Investigating cell waste removal genes in frontotemporal dementia Research project: Genetic and functional dissection of molecular underpinnings of Frontotemporal Dementia
Information BSL factsheets Learn about the different types of dementia from our British Sign Language (BSL) videos, produced by British Deaf Association (BDA) Scotland and funded by Life Changes Trust and the Big Lottery Fund.
Real stories Truth will out: A carer who has fought criticism and disbelief We meet Liz Lane, a carer who wants to make everyone aware of frontotemporal dementia. 01 August 2018 3
Real stories Q and A: Jules Emberton A 54-year old woman with frontotemporal dementia in Portsmouth answers our questions. 01 June 2018 0
Research Missed connections We look at how a repurposed drug could fix lost connections in frontotemporal dementia (FTD). 01 June 2018 0
Information What can I do about my husband's inappropriate sexual behaviour? From the June/July 2018 issue of Dementia together magazine, our Ask an expert column tackles a difficult subject.
