How we can help: Dementia information that you can rely on

Question:

‘I live with my aunt, who has Alzheimer’s. The changing messages about lockdown have been confusing, and I want reliable information about its impact on dementia.’ 

Answer:

One of the most difficult aspects of coping during coronavirus has been understanding and keeping up with the latest guidance.

There’s been a huge amount of information about the virus in government announcements, news reports and discussions with family members and friends. This has included a lot of detail about what we must and mustn’t do. 

When you’re caring for someone with dementia, this is especially hard to deal with.

Some of the guidance talks about vulnerable people, special provisions and organisations that should be able to provide help, but it’s not always clear when this applies to people with dementia.

We’ve been listening to people affected by dementia about the issues most important to them.

In the first weeks of the lockdown, this focused on how to stay safe, shopping and shielding, as well as keeping connected and active. We’ve added details to our information about visiting care homes, social distancing during difficult times and support bubbles. 

Accuracy and quality 

At Alzheimer’s Society, we know the importance of good quality information that is accurate and up to date. Our wide range of publications includes printed booklets and factsheets as well as the information on our website. We’re continually reviewing and updating all of these, and this takes time. 

Since the coronavirus outbreak started, we’ve needed to react quickly to get people the information they need. However, as the situation changes, it’s still crucial that this content is accurate and clear about how it relates to dementia. 

Our subject experts study official documents and guidance on coronavirus as it comes out. They check the evidence on topics including legal issues, dementia research and social care to make sure we are giving advice that is 100% error free.

How dementia feels 

Our information includes experiences and accounts from people with dementia, who also review all our publications. Our words need to ring true about their concerns, abilities, expectations and what dementia feels like.

Alongside our coronavirus information, you’ll find stories and real-life examples of how people are coping. 

You can be sure that our information is fact-checked and that it reflects what people with dementia have told us. We make sure it is as thorough and accessible as possible, and that everyone who needs the information can find and use it.