During the later stages of dementia most people will become increasingly frail due to the progression of the illness. They will also gradually become dependent on others for all of their care. Knowing what to expect can help everyone to prepare. It can enable the person with dementia to think about the kind of treatment and care they might want, and allows them to write an informed advance decision before they reach this stage so they can have input into how they will be cared for. It also allows carers and family to think about these aspects too.
The later stages of dementia can be a distressing time for carers and relatives. There is support available if you need it. Alzheimer's Society's National Dementia Helpline can provide information, support, guidance and signposting to other organisations.