Holby City Star Julia Deakin as Carole Copeland

Holby City’s dementia storyline shows the complex emotions after a diagnosis

Alzheimer’s Society has supported BBC’s Holby City on a dementia storyline featuring much-loved character, Carole Copeland.

Holby City character Carole Copeland, played by Julia Deakin, was diagnosed with vascular dementia earlier this year. 

The programme will follow Carole’s story in the coming months as her dementia progresses, highlighting key moments along her journey. Carole is supported in the show by her son Dom (played by David Ames), who is a doctor at the hospital.  

Alzheimer’s Society has worked with the programme's team on the story, reviewing scripts and giving feedback to make sure the portrayal of dementia is accurate. 

We spoke to Holby City producers Seán Gleeson and Ben Wadey about highlighting dementia on the show, and what they hope viewers will take away from the story. 

Why did you decide to focus on dementia on Holby City? 

Seán Gleeson (Series Producer): Dementia is a disease that touches so many people, and it’s felt almost more so through the enforced isolation of the coronavirus pandemic – certainly for my family. With Carole being such a well-loved character in the show, it was felt that telling the story through her would be both a potent and affecting tribute to those affected by dementia. 

Ben Wadey (Story Producer): Dementia is a hugely important issue, and one that will sadly touch many people at some point in their lives – whether through family, friends or themselves. It’s always important for us to use our platform to raise awareness, reduce stigma and normalise illnesses like these. 

What were some of the aspects of dementia you were keen to portray? 

Seán Gleeson (Series Producer): I think there were several distressing elements of the disease we wanted to witness, almost in an act of solidarity. One aspect that I found most affecting, though, was how it’s okay to join in with the alternate reality or imagination of a person with dementia if it helps and comforts them. It’s not ridiculous or shameful. It’s another opportunity to have some moments interacting. 

Ben Wadey (Story Producer): Dementia can be cruel; it can be scary for the person, but also upsetting for those family members who watch the decline of a loved one. However, as with many things in life, it can also bring humour, warmth – and reunite families. We were especially keen to show the complex fallout that a dementia diagnosis can have, from the heartbreak, through the laughs – and ultimately the love between Carole and Dom.

Carole Copeland out of focus in the foreground as her son Dom watches on

Carole (Julia Deakin) is supported by her son Dom (David Ames)

Initially, Carole doesn’t disclose her dementia diagnosis. What’s behind her decision?

Ben Wadey (Story Producer): Carole’s as proud a mum as you can get and she relishes the moments she gets to spend with her only son. So she’s scared that telling him about her diagnosis will push him away, or that he’ll treat her differently.

Carole knows that in the coming months things will change forever – so she decides to sit with the news for a bit first, and enjoy spending time with Dom before everything changes for them both.

How did you help the actors prepare to depict dementia accurately? 

Seán Gleeson (Series Producer): The team organised a workshop discussion and had advice from Alzheimer’s Society to support the work of all involved. But then there was plenty of anecdotal evidence once discussions started too. Many people had stories of family members. The actress herself, Julia Deakin, was also keen to give as authentic portrayal as possible and did a lot of her own complimentary preparation. 

Holby City Star Julia Deakin as Carole Copeland

Actress Julia Deakin did extensive research to prepare for the role

Is there anything you learned about dementia while making the show? 

Seán Gleeson (Series Producer): Not necessarily, but that may be because I lived with my father-in-law for the last year of his life and decline with vascular dementia. The episodes were a good opportunity to witness and pay tribute to those people affected by this cruel disease. 

Ben Wadey (Story Producer): We were really impacted by the amount of people who told us their own stories and how they had been affected by dementia. From those who have lost loved ones, to those who suspect that somebody they know is displaying early signs. It really is something that impacts so many people, in so many different ways.

What do you hope viewers take away from the storyline and Carole’s dementia journey?

Seán Gleeson (Series Producer): I hope that we can help cast a wider light on dementia, break some taboos and show people that they are not alone with it. Dementia can be cruel and harsh, but the person and their family can still share loving moments and a dignified end.

Ben Wadey (Story Producer): Aside from raising awareness and hopefully setting out some of the reality of what it’s like to go through treatment with dementia, we hope our viewers will be reminded to take time to appreciate those that they love. Life’s too short, and we need to make and cherish memories while we can.

Holby City is available on BBC One and iPlayer. If you're affected by dementia or worried about your memory, we're here for you:

Dementia Support Line
Our dementia advisers are here for you.
Dementia Support Forum
Visit our online community to get advice, share experiences, connect.


My mum was diagnosed with Alzheimers this year and there has been no ongoing support from the Memory Clinic or her GP... it's as if all they were looking for was a diagnosis and now that she's been diagnosed she's been dropped apart from being prescribed Donepezil.

Hi Matilda,

Sorry to hear about your mum's diagnosis, and that there has been no ongoing support.

We'd strongly recommend talking to one of our dementia advisers. They will be able to learn more about your situation and suggest information, advice and support that you may find helpful. Please call our Dementia Connect support line on 0333 150 3456.

More details about the support line (including opening hours) are available here:

You might also be interested to have a look at what support is available in your local area. You can search our dementia directory here: https://www.alzheimers.org.uk/find-support-near-you

We hope this helps, Matilda. Please do call the support line for more detailed support and advice.

Alzheimer's Society website team

Thanks so much.. this is so helpful. I'll follow all that up 😊

I thought the dementia storyline was overly romanticised. The overall storyline was much too short. It didn't portray the constant daily struggle of trying to deal with the victim losing things, having accidents, getting lost, needing care home admission and all the anguish that brings to patients and carers. I felt the impression given was that Don met his mum just in the hospital setting, giving a very narrow view of the demands of dementia care on the carer. The romantic notion of her dying at a favourite location is simply pie in the sky, when most die from each system in the body failing as they wither away in a care home. Dementia brings a daily grieving for the person they used to be with just the occasional tiny glimpse of their old self. The TV programme, 'Shetland' gave a better impression of dementia, while sadly, I found the Holby scenario 'light' and somewhat patronising.

It took my family 2 years to fight for a 2nd round of dementia tests which proved what we all knew - my mother had Alzheimer’s dementia. In those 2 years of fighting my mother’s brain had shown visible shrinkage. This proved that the original basic test was quite frankly laughable and unfit for purpose. I believe initial tests are deliberately made this way to ensure diagnosis is avoided for as long as possible thus relieving the NHS from its burden of duty of care for as long as possible. We must use Japan as a best practice template if we are to give people their legal and human rights to care and support. At present as for many years, our dementia care system from start to finish is broken. Don’t get me started on dementia palliative care.

You should watch Dementia and us on BBC2 iplayer. It’s a documentary filmed over 2 years about real people living with dementia and the way they live their lives to their best ability.
Post diagnosis for my husband was, after backwards and forwards visits to MAC was, eventually ‘oh you have vascular dementia and Alzheimer’s ‘ No explanation or support , he was 66