Residential respite care: Experiences, access and outcomes

Research project: Taking a break: Use of residential respite by people with dementia and carers: experiences, access, outcomes

Lead Investigator: Dr Kritika Samsi

  • Institution: King's College London
  • Grant type: Project Grant 
  • Duration: 24 months 
  • Amount: £172,558.90

Why did we fund this research?

Comments from our Research Network volunteers:

'This is a really interesting and valuable project. We need to understand how successful respite can be achieved for (family) carers - and those with dementia.'

Project summary

There is limited understanding of how people with dementia and their carers use residential respite care. This research will gather information about different people’s experiences

The background

Previous research has demonstrated the value of day care centres and respite for both the carer and person with dementia. 

There is also research being carried out to identify the best time for a person to move into a care home. However little is known about the experiences of people using residential respite care and the impact is has on them and their loved ones.

What does this project involve?

The researchers will initially carry out a review of all of the published evidence on respite care to build a picture of what is already known. 

They will then carry out 100 interviews with people with dementia and their carers who have either used respite care, declined it, or are planning to use it. This will enable them to understand more about people’s experiences, the reasons for their choices, and the impact that is has on them. 

How will this project help people with dementia?

Respite care is now generally purchased by families, either using their own money or through personal budgets. It’s important we understand the experiences people affected by dementia have of respite care. This will help clinicians to provide information and advice to families so that they can make informed decisions about care for their loved ones. 

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