Fix Dementia Care

People affected by dementia typically spend £100,000 on their own care due to a system that is unfair, unsustainable and in need of an urgent overhaul. Help us make sure that people with dementia are able to access the care they deserve, when they need it.

Many people affected by dementia face catastrophic care costs.

The video above tells the story of one such family, who have been battling the social care system to get support for their husband and father, who has dementia.

What is the problem with dementia care?

Over the past two decades, the average cost of a nursing home place has almost doubled and is now nearing £1,000 a week. The typical cost of dementia care is £100,000.

At Alzheimer’s Society, we regularly hear from people who have spent all of their life savings on care. Due to the complexity of the condition, the cost of dementia care is on average 15 per cent more expensive than other types of social care – we call this the ‘Dementia Penalty’.

The NHS is committed to the principle of access based on clinical need, not an individual’s ability to pay. It's time that people with dementia get the same treatment.

Many families experience stress and anguish fighting for the care they need. Even when care is accessed, there is no guarantee that it will be of good quality.

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We are calling for a social care system that works for people living with dementia and their families. Will you join thousands of others and help us campaign for a fairer system for dementia care?

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How will we fix dementia care?

It is a scandal that up and down the country, people are forced to spend their life savings on care that does not necessarily meet their needs.

With reform of social care on the political agenda for 2020, Alzheimer’s Society is calling on the government to commit to three critical steps to Fix Dementia Care:

  1. Invest £8bn in to the current social care system to stabilise it. After decades of underinvestment and neglect of increasing demand, adult social care is on the brink of collapse. Alzheimer's Society is calling for £8bn to be invested into the social care system in this spring's Budget on 11 March, with £2.65bn of that spent on people affected by dementia. This will help to stabilise the system, and improve the devastating financial and emotional impact faced by people affected by dementia when accessing care.
  2. Radically reform care funding. The Prime Minister has committee to bring forward a plan on care funding reform in 2020. Alzheimer’s Society is calling for care to be free at the point of use, and for risk to be pooled across the adult population. With universal free care, people with dementia could be confident that they will receive the care they need, when they need it, without risk of extra costs. It would also empower unpaid carers and reduce the impact on their own mental and physical health.
  3. Create a social care system that recognises the unique injustice of dementia, and delivers demonstrable improvements in people’s lives. Alzheimer’s Society research has found that dementia care is on average 15% more expensive than standard social care. Reform of adult social care must recognise the complex care needs of dementia and the debilitating costs currently being borne by families.

We are campaigning to make sure that the voices of people affected by dementia are heard both during this election and by the next Government. 

Your stories and support will fix this broken system once and for all.

'I was so pleased to be given the opportunity by Alzheimer’s Society to take my experience of the broken support system endured by my mum and myself, directly to the MPs themselves – something I never thought I would be able to do – Sandra

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