Turning up the Volume on living with dementia
A national survey and interview activity from Alzheimer's Society, to measure experience of people with dementia and carers.
This work was carried out to learn about the real story of what it’s like to live with dementia, or be an unpaid carer, in England, Wales and Northern Ireland - and to find out what the general public thinks and feels about dementia.
Moderators were provided with training by Alzheimer’s Society before the research.
indings show the gap that exists for some people with dementia between what they need to live well, and their day-to-day experience.
The results were used in a report 'Turning up the Volume: unheard voices of people with dementia' (2017)
What changed for people with dementia
Alzheimer's Society has been able to use the findings to help raise awareness in its policy and campaigns work.