Later stages of dementia

Real stories
Phyllis wants to help prepare others by sharing her experience of what it’s like to care for someone in the later stage of dementia.
Real stories
Loraine adores her father, Martin, but says she has watched the progression of his mixed dementia for long enough. Loraine shares the emotional experience of her dad not recognising her, the challenges of non-verbal communication and other difficulties that the later stages of dementia can bring.
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People with later-stage dementia will eventually need full-time care and support with daily living and personal care, such as eating, washing and dressing. Whatever kind of dementia a person has, their life expectancy is on average lower.

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International collaborations help our investments to go further. Learn more about our international partnerships and how they influence the dementia research landscape.

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There will be important decisions to make as the person nears the end of life, including whether they should be resuscitated if they have a heart attack, and any religious practices they want observed. Advance care planning can help to ensure that a person's wishes are known and respected.

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There are many ways to communicate with a person at the end of their life. There are also steps you can take to support a person with any pain, infections, eating and drinking problems, and delirium.

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After a deprivation of liberty has been authorised there are still important safeguards to make sure they are protected, including appointing a representative. The authorisation should have an end date and it can be reviewed at any time.

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The DoLS assessment makes sure that the care being given to the person with dementia is in the person’s best interests. There are six parts to the assessment: age, mental health, mental capacity, best interests, eligibility and no refusals.

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Deprivation of Liberty Safeguards (DoLS) are a set of checks that are part of the Mental Capacity Act 2005. Read about the DoLS procedure, which protects a person receiving care whose liberty has been limited, and tips to help you identify a deprivation of liberty.

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