Changes in perception - useful organisations

Get details of more organisations who can help with advice on changes in perception for people living with dementia.

Useful organisations

Carers UK

Telephone
0808 808 7777 (helpline, 9am–6pm Monday–Friday)

Email
[email protected]

Website
www.carersuk.org

Carers UK provides advice, information and support to carers.

The Lewy Body Society

Telephone
0800 888 6678 (helpline, 9am–9pm Monday–Friday, 9am–5pm Saturday and Sunday)

Email
[email protected]

Website
www.lewybody.org

The Lewy Body Society produces a guide to dementia with Lewy bodies. You can also access support and information from them by phone or email.

Macular Society

Telephone
0300 3030 111

Website
www.macularsociety.org

Macular Society is a national charity offering support and advice for anyone affected by central vision loss.

Mind

Telephone
0300 123 3393 (infoline, 9am–6pm Monday–Friday)

Email
[email protected]

Website
www.mind.org.uk

Mind provides advice and support to empower anyone experiencing a mental health problem.

Parkinson’s UK

Telephone
0808 800 0303

Email
[email protected]

Website
www.parkinsons.org.uk

The Parkinson’s UK helpline is a free and confidential service providing support to anyone affected by Parkinson’s.

RNIB (Royal National Institute of Blind People)

Telephone
0303 123 9999 (8am–8pm Monday–Friday, 9am–1pm Saturday)

Email
[email protected]

Website
www.rnib.org.uk

RNIB is a charity that offers support and advice to blind and partially sighted people in the UK.

RNID (Royal National Institute for Deaf People)

Telephone
0808 808 0123 (information line, 8.30am–5pm Monday–Friday)

Email
[email protected]

Website
www.rnid.org.uk

RNID is a national hearing loss charity. It has an information line which offers free confidential and impartial information on a range of subjects relating to deaf issues, hearing loss and tinnitus.

The Silver Line

Telephone
0800 470 80 90

Email
[email protected]

Website
www.thesilverline.org.uk

The Silver Line is a free confidential helpline providing information, friendship and advice to older people. It is open 24 hours a day, every day of the year.

Review information

Last reviewed: January 2021 
Next review due: January 2024 

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia. 

Reviewed by: Dr Daniel Harwood, Consultant Psychiatrist, Croydon Memory Service, South London and Maudsley NHS Trust, and Professor Claire Surr, Professor of Dementia Studies, Leeds Beckett University.

To give feedback on this information, or for a list of sources, please email [email protected]

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