Research 5 reasons to become a Research Network volunteer Research Network volunteer Keith Newbegin shares how his experience of caring for his wife has helped inform Society-funded research. Research Network volunteer Keith Newbegin shares how his experience of caring for his wife has helped inform Society-funded research. ... 23 November 2021
Research How experts by experience improve dementia research John Major, long-standing Research Network volunteer, shares his experience of meeting with one of our generous donors to share the important role the Research Network volunteers play within our research funding programme. John Major, long-standing Research Network volunteer, shares his experience of meeting with one of our generous donors to share the important role the Research Network volunteers play within our research funding programme. ... 10 November 2021
Real stories Jane's story: Using my lived experience to influence the government Jane Ward, Research Network Advisory Board member shares her experience of representing Alzheimer’s Society at the All-Party Parliamentary Group (APPG) on Dementia. Jane Ward, Research Network Advisory Board member shares her experience of representing Alzheimer’s Society at the All-Party Parliamentary Group (APPG) on Dementia. ... 10 November 2021
Real stories Understanding dementia: Living an unconvential life Bob Kahn's wife Sylvia died peacefully in her sleep on Sunday 27 June, 2021. This is a shortened version of a talk (or “skit” as Sylvia called it) they gave on their experiences to an Alzheimer’s Society meeting in Chester in July 2014. Bob Kahn's wife Sylvia died peacefully in her sleep on Sunday 27 June, 2021. This is a shortened version of a talk (or “skit” as Sylvia called it) they gave on their experiences to an Alzheimer’s Society meeting in Chester in July 2014. ... 02 November 2021
Real stories Making medicines safer for patients Founding member of the Research Network Shirley Nurock shares her experience representing Alzheimer's Society on the Medicines and Healthcare Products Regulatory Agency (MHRA) Public Consultative Forum. Founding member of the Research Network Shirley Nurock shares her experience representing Alzheimer's Society on the Medicines and Healthcare Products Regulatory Agency (MHRA) Public Consultative Forum. ... 02 November 2021
Research The Comprehensive Spending Review: A critical moment for dementia research It's critical that the government honour their pledge to double dementia research funding. Researcher Dr Nathan Woodling and Research Network Volunteer Jackie Samuell explain. It's critical that the government honour their pledge to double dementia research funding. Researcher Dr Nathan Woodling and Research Network Volunteer Jackie Samuell explain. ... 22 October 2021
Real stories Dementia is the most feared condition – what can we do about it? Research Network Volunteer Rosemary Phillips talks about her family history of dementia and evidence-based actions we can take to reduce our risk. Research Network Volunteer Rosemary Phillips talks about her family history of dementia and evidence-based actions we can take to reduce our risk. ... 19 October 2021
Research Patient and public involvement in palliative care: Challenges and opportunities Margaret Ogden, Alzheimer’s Society Research Network volunteer and Halle Johnson, patient and public involvement coordinator at the Cicely Saunders Institute share their experiences of working together to evaluate patient and public involvement in palliative care. Margaret Ogden, Alzheimer’s Society Research Network volunteer and Halle Johnson, patient and public involvement coordinator at the Cicely Saunders Institute share their experiences of working together to evaluate patient and public involvement in palliative care. ... 29 October 2020
Research Tackling the challenge of dementia diagnosis John Hammond, Alzheimer’s Society Research Network volunteer opened ‘The Future of Dementia Diagnostics’ roundtable with leaders in the field. He shared his story of getting a diagnosis for his Mum, painting a picture of the reality of diagnosis today. John Hammond, Alzheimer’s Society Research Network volunteer opened ‘The Future of Dementia Diagnostics’ roundtable with leaders in the field. He shared his story of getting a diagnosis for his Mum, painting a picture of the reality of diagnosis today. ... 27 October 2020
Research Is technology the key to living independently? Linda Powell, a dedicated Research Network volunteer, shares her experience of visiting a Digital Health Innovation lab and discusses the potential impact of technology on people affected by dementia. Linda Powell, a dedicated Research Network volunteer, shares her experience of visiting a Digital Health Innovation lab and discusses the potential impact of technology on people affected by dementia. ... 23 June 2020
Real stories Linda’s story: How coronavirus has strengthened my interest in dementia research Linda Steel, who cared for her mother with dementia for many years, shares why the pandemic has heightened her interest in dementia research and how being a Research Network volunteer has given her hope for the future. Linda Steel, who cared for her mother with dementia for many years, shares why the pandemic has heightened her interest in dementia research and how being a Research Network volunteer has given her hope for the future. ... 23 June 2020
Research Our Research Network volunteers supporting dementia researchers - virtually Deb and Karin, both members of our Research Network and former carers, have been working with researchers at Newcastle University. The research team are looking at how best to support people with dementia to keep active in their everyday lives. Deb and Karin, both members of our Research Network and former carers, have been working with researchers at Newcastle University. The research team are looking at how best to support people with dementia to keep active in their everyday lives. ... 23 June 2020