Information Rarer dementias: Getting the support you need on Dementia Talking Point Dementia Talking Point, our online community, can help people with less common types of dementia to feel less isolated. 03 June 2019 2
Research Genetic research: Hope for everyone affected by dementia Researchers have been working tirelessly over the last two decades to understand the genetics of dementia. Find out how this fast-moving area of research could be life-changing for people like Daniel Bradbury, who was diagnosed with a rare form of dementia, aged 30. 07 February 2019 8
Advice HIV-associated neurocognitive disorder (HAND) People with HIV and AIDS sometimes develop cognitive impairment, particularly in the later stages of their condition.
Advice Creutzfeldt-Jakob disease Creutzfeldt-Jakob disease (CJD) is caused by an abnormally shaped protein called a prion infecting the brain.
Advice What causes young-onset dementia? The causes of young-onset dementia are different from those in older people. The young onset of some of the most common types of dementia are described on this page.
Advice Rarer types of dementia - other resources Here you will find a list of other useful organisations that may be able to provide you with further information about rarer types of dementia.
Advice Progressive supranuclear palsy (PSP) Progressive supranuclear palsy (PSP) is a condition that causes both dementia and problems with movement.
Research Posterior cortical atrophy Posterior cortical atrophy (PCA), also known as Benson's syndrome, is a rare degenerative condition in which damage occurs at the back (posterior region) of the brain. In the vast majority of people, the cause of PCA is Alzheimer's disease.
Advice Parkinson's disease Parkinson's disease dementia accounts for around 2 per cent of all cases of dementia in the UK.
Advice Normal pressure hydrocephalus (NPH) Normal pressure hydrocephalus (NPH) happens when too much fluid builds up in a person’s brain without increasing pressure in their brain tissue.
Information Niemann-Pick disease type C Niemann-Pick disease type C is one of a group of rare inherited disorders. It is not related to frontotemporal dementia, which is also sometimes called Pick's disease.
Advice Multiple sclerosis Some people with multiple sclerosis (MS) experience a loss of some of their mental abilities. This happens if damage caused by the MS occurs in certain parts of the brain.
