Genetics of dementia - other resources
Here you will find a list of other useful organisations that may be able to provide you with further information on genetics.
- Genetics of dementia
- Alzheimer's disease and genes
- Vascular dementia and genes
- Frontotemporal dementia and genes
- Dementia with Lewy bodies and genes
- Other conditions and genes
- Types of genetic testing
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Genetics of dementia
Other useful organisations
Genetic Alliance UK
020 7831 0883
[email protected]ce.org.uk
geneticalliance.org.uk
This national charity works to improve the lives of patients and families affected by all types of genetic conditions. It provides information about NHS genetics centres and insurance.
Huntington's Disease Association
0151 331 5444 (advice line, 9am–5pm, Monday to Friday)
[email protected]
hda.org.uk
Huntington's Disease Association supports people affected by Huntington's disease and provides information and advice to professionals who are supporting affected families.
Rare Dementia Support
07592 540555
[email protected]
ucl.ac.uk/drc/support-groups
Rare Dementia Support provides information and support to people with rare forms of dementia, their families, friends and healthcare professionals. It has support groups that cover rare dementia diagnoses such as frontotemporal dementia, posterior cortical atrophy, primary progressive aphasia, familial Alzheimer's disease and familial frontotemporal dementia (FTD).
More information
Last reviewed: May 2016
Next review due: May 2019
Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.
Reviewed by: Dr Rita Louro Guerreiro, Department of Molecular Neuroscience, Institute of Neurology, London and Dr Nayana Lahiri, Clinical Geneticist, South West Thames Regional Genetic Services, St George's University Hospitals NHS Foundation Trust, London
To give feedback on this information, or for a list of sources, please contact [email protected]