Genetics of dementia - other resources

Here you will find a list of other useful organisations that may be able to provide you with further information on genetics.

Other useful organisations

Genetic Alliance UK

020 7831 0883
[email protected]

This national charity works to improve the lives of patients and families affected by all types of genetic conditions. It provides information about NHS genetics centres and insurance.

Huntington's Disease Association

0151 331 5444 (advice line, 9am–5pm, Monday to Friday)
[email protected]

Huntington's Disease Association supports people affected by Huntington's disease and provides information and advice to professionals who are supporting affected families.

Rare Dementia Support

07592 540555
[email protected]

Rare Dementia Support provides information and support to people with rare forms of dementia, their families, friends and healthcare professionals. It has support groups that cover rare dementia diagnoses such as frontotemporal dementia, posterior cortical atrophy, primary progressive aphasia, familial Alzheimer's disease and familial frontotemporal dementia (FTD).

More information

Last reviewed: May 2016
Next review due: May 2019

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.

Reviewed by: Dr Rita Louro Guerreiro, Department of Molecular Neuroscience, Institute of Neurology, London and Dr Nayana Lahiri, Clinical Geneticist, South West Thames Regional Genetic Services, St George's University Hospitals NHS Foundation Trust, London

To give feedback on this information, or for a list of sources, please contact [email protected]

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