Genetics of dementia - other resources

Other useful organisations

Genetic Alliance UK

A national charity working to improve the lives of patients and families affected by all types of genetic conditions. Includes information about NHS genetics centres and insurance.

Address: 4D Leroy House, 436 Essex Road, London N1 3QP
Telephone: 020 7704 3141
Email: [email protected]
Web: geneticalliance.org.uk

Huntington's Disease Association

Supports people affected by Huntington's disease and provides information and advice to professionals who are supporting affected families.

Address: Suite 24, Liverpool Science Park IC1, 131 Mount Pleasant, Liverpool L3 5TF
Telephone: 0151 331 5444 (advice line, 9am-5pm, Monday to Friday)
Email: [email protected]
Web: hda.org.uk

Rare Dementia Support

Support groups that provide information and support to people with rare forms of dementia, their families, friends and healthcare professionals. Covers rare dementia diagnoses such as frontotemporal dementia, posterior cortical atrophy, primary progressive aphasia, familial Alzheimer's disease and familial frontotemporal dementia (FTD).

Address: Dementia Research Centre, First floor, 8-11 Queen Square, London WC1N 3AR
Telephone: 07592 540555
Web: ucl.ac.uk/drc/support-groups

More information

Last reviewed: May 2016

Next review due: May 2019

Reviewed by: Dr Rita Louro Guerreiro, Department of Molecular Neuroscience, Institute of Neurology, London and Dr Nayana Lahiri, Clinical Geneticist, South West Thames Regional Genetic Services, St George's University Hospitals NHS Foundation Trust, London

This information has also been reviewed by people affected by dementia. A list of sources is available on request via email.