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Wendy Mitchell was diagnosed with young-onset Alzheimer's disease in 2014, aged 58. Here she shares exclusive excerpts from her book about dementia 'Somebody I used to know' and the conversation she had with work colleagues about her dementia diagnosis.
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As a nurse and social worker I learned the care system inside out. Now I'm calling for urgent change
Before she was diagnosed with young-onset dementia, Julie Hayden worked as both a nurse and a social worker. Julie's career didn't prepare her for her own diagnosis, but she explains how she learned the flaws in our 'fractured' dementia care system.
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Raising awareness of incontinence and dementia
Raising awareness of incontinence and dementia .Amanda Quinn wasn’t aware that incontinence could be a symptom of dementia when she was diagnosed with young-onset Alzheimer’s disease aged 49. Read her story, and learn why she feels the taboos around toilets must be broken.
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Caring for a parent with dementia while still in your 20s
Caring for a parent with dementia while still in your 20s .Jonathan Knight was only 20 when his late mum was diagnosed with young-onset Alzheimer’s.
Supernova's director Harry Macqueen on the film's touching depiction of dementia
Supernova's director Harry Macqueen on the film's touching depiction of dementia .Supernova is a heartfelt modern love story from writer and director Harry Macqueen. In this romantic drama, actors Colin Firth and Stanley Tucci portray a couple dealing with the young-onset diagnosis of Posterior Cortical Atrophy (PCA).
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Living with dementia as a younger person
Living with dementia as a younger person .The issues faced by someone with young-onset dementia will be very different to those experienced by someone older. This page includes information on talking to children about a diagnosis, driving and any benefit entitlements.
‘With Alzheimer’s, you are constantly in a state of grieving’: Loretta’s dementia story
‘With Alzheimer’s, you are constantly in a state of grieving’: Loretta’s dementia story .When Loretta's mum, Dinah, was diagnosed with young-onset dementia, Loretta began to grieve for the person she was before her diagnosis. Dinah sadly passed away in 2020, which has led Loretta to reflect on her personal experience as a carer.
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Life after lockdown: Adjusting to the 'new normal' for a person with dementia
Life after lockdown: Adjusting to the 'new normal' for a person with dementia .Some people experience anxiety or low moods because of coronavirus restrictions. Andy, who has young-onset dementia, shares how shielding during lockdowns has affected him. Find out what carers can do to help support their loved ones with dementia when restrictions change.
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My dementia diagnosis experience was abhorrent so I became a campaigner
My dementia diagnosis experience was abhorrent so I became a campaigner .When John was diagnosed with young-onset Alzheimer’s disease, it was a huge shock to him and his family. He received little support after the news was delivered and is now campaigning to improve the diagnosis experience.
Mum has dementia and recognises my face but doesn't know my name
Mum has dementia and recognises my face but doesn't know my name .Leanne's mum Hilary was diagnosed with young-onset dementia. Here, she shares her family's story and her feelings throughout their journey, from the initial signs that something was wrong to becoming a carer for her mum.
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