A 54-year old woman with frontotemporal dementia in Portsmouth answers our questions.

Jules Emberton

What’s changed most since your diagnosis?

I get more frustrated now when people aren’t being understanding. Having frontotemporal dementia, your behaviour changes anyway, and if my back’s up about it I can get on my soapbox. My attitude’s changed and everybody else needs to catch up!

What would you take to your desert island?

I’d take my memory box. I made it after my son bought me a Talking photo album from the Society’s online shop. A colleague lost her husband three years ago and had just got around to doing a memory box, but I wanted to make mine while I’m alive. The photos and objects in it help trigger memories.

How has Alzheimer’s Society helped you?

I got a huge list of Alzheimer’s Society publications – all factual, not like anything you’d get by googling. I work in a carpet store, and I’m also getting the Society’s help to make the company more dementia friendly.

What song or tune sums up your life so far?

What a wonderful world, by Louis Armstrong. It’s my favourite song – while it’s quite slow, it’s very uplifting.

What is your most treasured possession?

I haven’t got any material things that I treasure, but I would say my children and grandchildren. I see them every day on FaceTime video calls – they keep me going.

Dementia together magazine: June/July 18

Dementia together magazine is for everyone in the dementia movement and anyone affected by the condition.
Subscribe now
Dementia together magazine is for everyone in the dementia movement and anyone affected by the condition.
Subscribe now
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