Dementia with Lewy bodies – more resources

Get details of organisations that can provide information and support for dementia with Lewy bodies.

Other useful organisations

Lewy Body Society

01942 914000 (information)
0800 888 6678 (helpline 9am–9pm Monday to Friday, 9am–5pm Saturday and Sunday)
[email protected]  

This charity aims to raise awareness of DLB for the general public and educate those in the medical profession and decision-making positions about all aspects of the disease. It also supports research into the disease.

Parkinson's UK

0808 800 0303 (helpline 9am–8pm Monday to Friday, 10am–2pm Saturday)
[email protected]

This charity provides information, advice, support and publications for people with Parkinson's disease. It can put people in touch with their nearest branch, offering information, support and social contact for those with Parkinson's and their families.

More information and resources

Last reviewed: June 2016
Next review due: June 2019

Reviewed by: Dr Ian McKeith, Professor of Old Age Psychiatry, Campus for Ageing and Vitality, Newcastle University and Dr Zuzana Walker, Reader in Psychiatry of the Elderly, Division of Psychiatry, University College London

This factsheet has also been reviewed by people affected by dementia. To give feedback, or for a list of sources, please email [email protected]

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