End of life care

The period when someone with dementia is approaching the end of their life is inevitably difficult and emotional. People with dementia have the right to dignity and a 'good death'. This section for carers looks at what happens when someone with advanced dementia is nearing the end of life, and when they die. It covers what carers can do to support the person, themselves and other close family or friends, and some of the issues they need to consider.

You might not want to think or talk about many of these things. You might find reading this section upsetting. But if you have had these difficult conversations with the person, and they have planned ahead, this can help to ensure the person has a good death when the time comes. It will also help if care professionals communicate well now, with you and with each other.

Planning for the end of life should start as early as possible after a diagnosis. There is more on making choices about future care (advance care planning) in our pages: Lasting power of attorney, and Advance decisions and advance statements.