How we produce our information about dementia

We produce a wide range of information for people affected by dementia in many formats. Our online and print publications are based on evidence and feedback, and are reviewed and updated every three years.

What information about dementia do we produce?

Our information is for people living with dementia and their family, friends and carers. We provide guidance and advice on a wide range of topics from coping with symptoms, and accessing health and social care, to keeping active and planning ahead.

Information helps people affected by dementia to live better with the condition, make day-to-day and future decisions, and be more in control. We include details about further support and services and how to access these in all our publications.

Finding dementia information online

Information pages on this site are found in the About dementia and Get support sections of our website.

Some popular information topics are available in audio, video and British Sign Language versions.

You can also read our simple, summarised helpsheets online,  or you can them download or print them at home.

Finding dementia information in print

Almost all the information you can find online is available as a print publication.

You can download many of these as PDFs or order individual copies including:

These comprehensive guides provide a general, introductory overview of the main topics and issues following a diagnosis of dementia for both the person with dementia and carers. 

Our print publications also include:

  • booklets – practical information on common aspects of life with dementia. Most booklets are written specifically for people living with dementia. There are also booklets for carers.
  • factsheets – more detailed information on a range of topics for anyone affected by dementia, categorised by four subject areas
    • key facts or aspects about dementia
    • practical and emotional guidance
    • health and social care
    • legal and financial matters.
  • tools for people with dementia – such as our This is me form and Helpcards.

We also produce other formats, such as translated versions and Easy Read, so that everyone can access the information in the way that’s best for them.

See our full list of publications

Visit our full list of publications to print, download and order any of our information resources for people affected by dementia.

Browse our full list

How do we produce our dementia information?

Our information is reviewed and updated every three years using quality-controlled processes. It is based on current evidence and reviewed by people affected by dementia, as well as professionals whose work involves people with dementia.

Our processes ensure that all our information is:

  • based on the needs and experiences of people affected by dementia – we tailor our information to the needs of our audiences using feedback from people affected by dementia, as well as the specialists who support them. Everything we produce is also reviewed by a panel of people with personal experience of dementia. These volunteers ensure that our information reflects authentic lived experiences.
  • accurate and reliable – our in-house team of dementia experts make sure our information and advice is based on the latest and most reliable evidence. To see a list of sources for any piece of our information, email [email protected]rg.uk
  • clear and simple – our writers and editors use plain English to make our information understandable and accessible. We try to keep the language clear and jargon-free so as many people as possible can use it. 
  • inclusive – at each review, we make sure that our language, examples and photography continue to reflect and represent the diversity of people affected by dementia. We also do this by recruiting new members to our reader panel with a wide range of experiences, perspectives and backgrounds. 

We are grateful to all the dementia professionals and people affected by dementia who generously give their time to help us develop our publications.

Read our guide to positive language

Our guide to positive language explains the main rules and principles when talking about dementia, and why they matter. 

Read the guide

Alzheimer’s Society’s quality policy

Our information is a core part of Dementia Connect – Alzheimer’s Society’s personalised service providing support for people affected by dementia.

Quality assurance within Dementia Connect is certified to the internationally recognised Quality Management System standard (ISO 9001:2015). This demonstrates our commitment to people affected by dementia and the continuous improvement of our services.

The Department of Health Information Standard

Between 2011 and 2019, Alzheimer's Society was accredited under the Department of Health's Information Standard, which was a quality assurance standard recognising trustworthy producers of health and social care information.

The Information Standard assessment and certification scheme was based on a rigorous set of criteria to ensure the information production was of a high quality.

The scheme is now closed but we remain committed to producing the highest quality, evidence-based information as outlined in the quality statements developed from the scheme’s principles.

Copyright and permissions requests

If you wish to re-use any content from Alzheimer's Society's publications or website in any media, please complete our online permission request form.

Help us provide dementia information

We could not produce accurate, accessible and relevant information without your support. Whether you are living with dementia, caring for a person with dementia or a professional, you can use what you know and feel to make sure our content reflects the reality of dementia. 

We want our reader and professional panels to include a diversity of experiences, backgrounds and circumstances. This means our information reflects and represents a wide range of people.  

Join our reader panel

If you are living with dementia, or if you are a carer, family member or friend of a person with dementia, you can help us improve our information by joining our reader panel. 

Being a reader panel member involves reading draft versions of our information and letting us know how clear and relevant you think it is. You don’t need any qualifications, just personal experience of dementia. To find out more, email [email protected] 

Can you provide a professional perspective?

Our quality processes also include review from professional experts. These come from a wide range of disciplines including health, social care, the law and academic organisations. We’d love to hear from you if your work involves people affected by dementia, and you can help us with the review of our publications. Email [email protected] for more information.

Donate

With your help we can continue to provide vital services, information and advice to people affected by dementia. To make a single or monthly donation, please call us on 0330 333 0804 or donate online.
 

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