Support in the later stages of dementia - useful organisations

See other organisations who may be able to help in the later stages of dementia.

Supporting in the later stages of dementia
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Useful organisations

Age UK

Telephone
0800 678 1602 (advice line, 8am–7pm Monday–Sunday)

Email
[email protected]

Website
www.ageuk.org.uk

Wales – Age Cymru

Telephone
0300 303 44 98 (advice line, 9am–5pm Monday–Friday)

Email
[email protected]

Website
www.agecymru.org.uk

Northern Ireland – Age NI

Telephone
0808 808 7575 (advice line, 8am–7pm every day)

Email
[email protected]

Website
www.ageuk.org.uk/northern-ireland

Age UK, Age Cymru and Age NI aim to improve later life for everyone through information and advice, services, campaigns, products, training and research.

Carers UK

Telephone
0808 808 7777 (advice line, 10am–4pm Mondays and Tuesdays)

Email
[email protected]
 

Website
www.carersuk.org
www.carersuk.org/forum (online discussion forum)

Carers UK provides information and advice to carers about their rights and how to access support.

Dementia UK

Telephone
0800 888 6678 (helpline, 9am–9pm Monday–Friday, 9am–5pm Saturday and Sunday)

Email
[email protected]
 

Website
www.dementiauk.org

Dementia UK is a national charity committed to improving quality of life for all people affected by dementia. It provides Admiral nurses who are mental health nurses specialising in dementia care.

Elderly Accommodation Counsel (EAC) FirstStop Advice

Telephone
0800 377 7070
 

Email
[email protected]
 

Website
www.eac.org.uk

FirstStop Advice provides independent, impartial and free advice and information to older people, their families and carers about housing and care options in later life.

Hospice UK

Telephone
0207 520 8200
 

Email
www.hospiceuk.org

Hospice UK is the national charity for hospices in the UK. It provides information and support and can help people find a local hospice.

Office of the Public Guardian (OPG)

Telephone
0300 456 0300

Email
[email protected]

Website
www.gov.uk/government/organisations/office-of-the-public-guardian

The OPG protects people in England and Wales who may not have the mental capacity to make certain decisions for themselves, such as about their health and finance.

Rare Dementia Support UK

Telephone
020 3325 0828

Email
[email protected]

Website
www.raredementiasupport.org

Rare Dementia Support (RDS) is a UK-based service provided by the UCL Dementia Research Centre (DRC) that supports people affected by seven rare dementias. These are: Familial Alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA), primary progressive aphasia (PPA), Lewy body dementia (LBD) and Young-onset Alzheimer’s disease (YOAD). RDS provide free information, advice and support groups for people living with these conditions and for their carers.

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Review information

Last reviewed: November 2021

Next review due: November 2024 

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.

Reviewed by: Dr Jacqueline Crowther, Admiral Nurse End of Life Care, Kirkwood Hospice West Yorkshire, Honorary Research Associate University of Liverpool and Catharine Jenkins, Senior Lecturer, Mental Health Nursing, Birmingham City University

To give feedback on this information, or for a list of sources, please email [email protected]

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