I lost my mum to Alzheimer's 4 years ago, I can still remember her saying to me that she didn't know what she was doing and how scared it made her feel. Now my father...
My nan had dementia and she passed away 20th January...
I am supporting Dementia UK through my late husband Peter Thomas Roby who passed away on 8th March this year.
I’m writing to tell you about my lovely mum who had...
Obsessed by Penguins but going to the Antarctic is very expensive so I did no go.
Then my good friend got early onset Alzheimer's.
He did not know me and I realised...
My husband started to shows signs of memory loss 3 years ago, when he couldn't remember going on holiday with friends. Then it was little things every day. He refused...
My Mum’s worst fear was getting Alzheimer’s & did everything to keep her mind active. She was diagnosed in 2008 and passed away in 2018. Specialist said she had a...
My mother-in-law My Sister Bettboo passed away before christmas died of Dementia and at present my Brother Albert has Dementia the last of my 7 siblings So Sad.You...
My Mum. Pauline Poole started developing memory...
I was shocked when I was diagnosed with Alzheimer's in 2024 age 66. I am aware of being different and certainly being treated differently because of this and hate that...
“What is the BEST thing about your Dementia,...
I live with my mum Julie who got diagnosed with...
I lost my mum to Alzheimer's 4 years ago, I can still remember her saying to me that she didn't know what she was doing and how scared it made her feel. Now my father is also suffering with Alzheimer's, and I'm watching him slowly go through the same decline. It's an awful disease that hopefully greater awareness will lead to better treatment for both Alzheimer's and those effected with it.
Ralph
My nan had dementia and she passed away 20th January 2025. She fought for so long with this awful disease. She still had her sense of humour until the very end of her life. He lived her life to the full. She left behind my mother (her daughter), my uncle (her son), 3 grandsons, 1 granddaughter (me) and 2 great grandchildren with one on the way! We miss her every single day but she’s back with the love of her life
Lauren
I am supporting Dementia UK through my late husband Peter Thomas Roby who passed away on 8th March this year.
Judith Roby
I’m writing to tell you about my lovely mum who had vascular dementia.
Such a lovely mum always looked out for the family.
She was my best friend we done a lot together.
Towards the end she had to go into a home for her own safety.
She always knew who I was. And I was there for her last breath.
I miss her so much and that’s why I support Alzheimer’s.
Such a lovely mum always looked out for the family.
She was my best friend we done a lot together.
Towards the end she had to go into a home for her own safety.
She always knew who I was. And I was there for her last breath.
I miss her so much and that’s why I support Alzheimer’s.
Susan
Obsessed by Penguins but going to the Antarctic is very expensive so I did no go.
Then my good friend got early onset Alzheimer's.
He did not know me and I realised that we get only so much life and should buses it the best we can.
So I went.
Now I realise I may be in the early stages but I have my pictures to help me remember.
Then my good friend got early onset Alzheimer's.
He did not know me and I realised that we get only so much life and should buses it the best we can.
So I went.
Now I realise I may be in the early stages but I have my pictures to help me remember.
Lewis
My husband started to shows signs of memory loss 3 years ago, when he couldn't remember going on holiday with friends. Then it was little things every day. He refused to acknowledge his memory lapses, and would argue. If he didn't remember, then it didn't happen. I contacted our local memory clinic and they sent for a scan, which showed there was some changes in his brain. They diagnosed Mild Cognitive Impairment and short term memory loss. It's something we've both had to adapt to, me more than him. There are a lot of things I can't ask him to do anymore because he'll forget. I now do everything for him. He puts things away in the wrong place, even though they've never been anywhere else. He doesn't cook for himself anymore, I have to ensure he eats. Hes become withdrawn and doesn't like to go out anymore, although I make him meet his friends once a week. His condition hasn't got seriously worse, but there are little changes. He was always easy going by nature, if a little thoughtless, but now is prone to the odd flashes of temper. It's just a matter of taking each day as it comes, and telling myself not to get angry when he behaves this way. Our daughters are a good help and our little great grandson is a joy to him, even though he can't look after him for more than an hour or so as he is a lively little boy
Lesley
My Mum’s worst fear was getting Alzheimer’s & did everything to keep her mind active. She was diagnosed in 2008 and passed away in 2018. Specialist said she had a slow progression until 2016 it was full on. I looked after her (an only child) until I had no choice but to put her in a care home specialising in Dementia Care. I hated doing it but my own mental health was suffering so that’s what I did. I lost the Mum I had always knew to this terrible disease. It just wasn’t her towards the end! I don’t donate as much as I would like to but every little helps to fight this awful illness.
Carol
My mother-in-law My Sister Bettboo passed away before christmas died of Dementia and at present my Brother Albert has Dementia the last of my 7 siblings So Sad.You hold on to the good memories as hard as you can
Mandy
My Mum. Pauline Poole started developing memory problems in 2012 or 2013. Gradually struggling with the computer then shopping. money and time.
Mum was very organised and began to organise her life.
We started losing her gradually over the next years very much to mum's frustration.
I hear final 18months we had tremendous help from Age UK and her social worker (mum was a social worker specifically child phycology) Finally Mums care home in her final months were great. Taking away at least one worry
Mum final passed away ( or my dad came to take her to heaven) in 2019 .
I give this donation and in my will for all the past and future people Alzheimer's Society has helped.
Mum was very organised and began to organise her life.
We started losing her gradually over the next years very much to mum's frustration.
I hear final 18months we had tremendous help from Age UK and her social worker (mum was a social worker specifically child phycology) Finally Mums care home in her final months were great. Taking away at least one worry
Mum final passed away ( or my dad came to take her to heaven) in 2019 .
I give this donation and in my will for all the past and future people Alzheimer's Society has helped.
Lawrence Poole
I was shocked when I was diagnosed with Alzheimer's in 2024 age 66. I am aware of being different and certainly being treated differently because of this and hate that I am no longer independent. I'm live in fear of the future and I'm giving because I want to contribute to others not having to go through what I am going through.
Lynda
“What is the BEST thing about your Dementia, John?”……
These words came from a nine-year-old child in a classroom of children I was attending as a ‘Lived-Experience’ volunteer with Sally Townsend from Alzheimer’s Society in a joint educational programme with Bristol Dementia Wellbeing Service, here in Bristol the other week!
We visit many Primary and secondary schools educating the children and students of what Dementia is. I go along with Sally to show them what it ISN’T. It’s both a drive for me as well as a purpose and I absolutely love the cards and letters I get from the little ones telling me how much they enjoyed the story of my ‘journey’ with my Dementia, and its meaning to both them and our society, and how much they learned.
… anyway, back to the question!
“I’ve worked on my own as a handyman most of my life but coming into your school and classroom today has allowed me to meet and chat with all you guys here at your school. That’s the ‘BEST’ bit of my Dementia!”
I don’t know, as any of us do, where my journey will take me, but for now, both my wife and myself simply adjust our daily lives to the changes that occur as we discover them. When I wake in the morning I always look at what I HAVE and never look back on what I have lost.
Blessings, John Pops Hyde.
These words came from a nine-year-old child in a classroom of children I was attending as a ‘Lived-Experience’ volunteer with Sally Townsend from Alzheimer’s Society in a joint educational programme with Bristol Dementia Wellbeing Service, here in Bristol the other week!
We visit many Primary and secondary schools educating the children and students of what Dementia is. I go along with Sally to show them what it ISN’T. It’s both a drive for me as well as a purpose and I absolutely love the cards and letters I get from the little ones telling me how much they enjoyed the story of my ‘journey’ with my Dementia, and its meaning to both them and our society, and how much they learned.
… anyway, back to the question!
“I’ve worked on my own as a handyman most of my life but coming into your school and classroom today has allowed me to meet and chat with all you guys here at your school. That’s the ‘BEST’ bit of my Dementia!”
I don’t know, as any of us do, where my journey will take me, but for now, both my wife and myself simply adjust our daily lives to the changes that occur as we discover them. When I wake in the morning I always look at what I HAVE and never look back on what I have lost.
Blessings, John Pops Hyde.
John Pops
I live with my mum Julie who got diagnosed with Alzheimer's 4 years ago. I take her to local memory cafés which I'm certain has slowed the progression. It's so heart-warming to see her laugh and chat with others and she's made some wonderful friends. I feel totally honoured to be able to spend this time with her. I've got great support from our local charity Kingscare and they help me navigate different circumstances, often quite difficult ones.
Things can be really tough, but I know I've got amazing friends, partner and son who I know will help if I need it.
If I can give one piece of advice, speaking from experience, it's this; make sure you find time for yourself because you are important and you can't care for someone else if you don't look after yourself. If you need professional support, speak with an Admiral Nurse. I did and the tips and strategies she gave me were invaluable.
Things can be really tough, but I know I've got amazing friends, partner and son who I know will help if I need it.
If I can give one piece of advice, speaking from experience, it's this; make sure you find time for yourself because you are important and you can't care for someone else if you don't look after yourself. If you need professional support, speak with an Admiral Nurse. I did and the tips and strategies she gave me were invaluable.
Mandy
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However you’ve been affected by dementia, this is a place for you to share your Forget Me Not story with other people who get it.