Dementia Support Line
My Mum. Pauline Poole started developing memory...
I was shocked when I was diagnosed with Alzheimer's in 2024 age 66. I am aware of being different and certainly being treated differently because of this and hate that...
“What is the BEST thing about your Dementia,...
I live with my mum Julie who got diagnosed with...
My Mum was always a well ro lady who lile to alot of her jobs etc on her own
We would always go to see her and help her when she needed help
But gradually over a...
My dear paternal grandmother, a retired Welsh schoolteacher, was fine in the summer of 1969, but by the winter of 1970 she was suffering from unspecified dementia. My...
I am writing about my wife Wendy. Wendy was diagnosed with this terrible disease, lewy body dementia. My wife of 63 years passed away in February this year. She...
Our lovely Mum (to seven of us) developed Dementia quite slowly but for the last ten years of her life (after our father died) was unable to live on her own and lived...
My story is a well worn, common tale of a man with superb wit and intelect, becoming a virtual shell who had no idea what day it was, let alone who I and my sisters...
My wife Linda was diagnosed with semantic dementia...
my aunt died of dementia, now my dads got it i went to see him 2weeks ago, after chatting for 20mins, he said, ive got a son like you, are you my son, youll never...
My lovely dad had dementia for roughly 12 years ! It...
My Mum. Pauline Poole started developing memory problems in 2012 or 2013. Gradually struggling with the computer then shopping. money and time.
Mum was very organised and began to organise her life.
We started losing her gradually over the next years very much to mum's frustration.
I hear final 18months we had tremendous help from Age UK and her social worker (mum was a social worker specifically child phycology) Finally Mums care home in her final months were great. Taking away at least one worry
Mum final passed away ( or my dad came to take her to heaven) in 2019 .
I give this donation and in my will for all the past and future people Alzheimer's Society has helped.
Mum was very organised and began to organise her life.
We started losing her gradually over the next years very much to mum's frustration.
I hear final 18months we had tremendous help from Age UK and her social worker (mum was a social worker specifically child phycology) Finally Mums care home in her final months were great. Taking away at least one worry
Mum final passed away ( or my dad came to take her to heaven) in 2019 .
I give this donation and in my will for all the past and future people Alzheimer's Society has helped.
Lawrence Poole
I was shocked when I was diagnosed with Alzheimer's in 2024 age 66. I am aware of being different and certainly being treated differently because of this and hate that I am no longer independent. I'm live in fear of the future and I'm giving because I want to contribute to others not having to go through what I am going through.
Lynda
“What is the BEST thing about your Dementia, John?”……
These words came from a nine-year-old child in a classroom of children I was attending as a ‘Lived-Experience’ volunteer with Sally Townsend from Alzheimer’s Society in a joint educational programme with Bristol Dementia Wellbeing Service, here in Bristol the other week!
We visit many Primary and secondary schools educating the children and students of what Dementia is. I go along with Sally to show them what it ISN’T. It’s both a drive for me as well as a purpose and I absolutely love the cards and letters I get from the little ones telling me how much they enjoyed the story of my ‘journey’ with my Dementia, and its meaning to both them and our society, and how much they learned.
… anyway, back to the question!
“I’ve worked on my own as a handyman most of my life but coming into your school and classroom today has allowed me to meet and chat with all you guys here at your school. That’s the ‘BEST’ bit of my Dementia!”
I don’t know, as any of us do, where my journey will take me, but for now, both my wife and myself simply adjust our daily lives to the changes that occur as we discover them. When I wake in the morning I always look at what I HAVE and never look back on what I have lost.
Blessings, John Pops Hyde.
These words came from a nine-year-old child in a classroom of children I was attending as a ‘Lived-Experience’ volunteer with Sally Townsend from Alzheimer’s Society in a joint educational programme with Bristol Dementia Wellbeing Service, here in Bristol the other week!
We visit many Primary and secondary schools educating the children and students of what Dementia is. I go along with Sally to show them what it ISN’T. It’s both a drive for me as well as a purpose and I absolutely love the cards and letters I get from the little ones telling me how much they enjoyed the story of my ‘journey’ with my Dementia, and its meaning to both them and our society, and how much they learned.
… anyway, back to the question!
“I’ve worked on my own as a handyman most of my life but coming into your school and classroom today has allowed me to meet and chat with all you guys here at your school. That’s the ‘BEST’ bit of my Dementia!”
I don’t know, as any of us do, where my journey will take me, but for now, both my wife and myself simply adjust our daily lives to the changes that occur as we discover them. When I wake in the morning I always look at what I HAVE and never look back on what I have lost.
Blessings, John Pops Hyde.
John Pops
I live with my mum Julie who got diagnosed with Alzheimer's 4 years ago. I take her to local memory cafés which I'm certain has slowed the progression. It's so heart-warming to see her laugh and chat with others and she's made some wonderful friends. I feel totally honoured to be able to spend this time with her. I've got great support from our local charity Kingscare and they help me navigate different circumstances, often quite difficult ones.
Things can be really tough, but I know I've got amazing friends, partner and son who I know will help if I need it.
If I can give one piece of advice, speaking from experience, it's this; make sure you find time for yourself because you are important and you can't care for someone else if you don't look after yourself. If you need professional support, speak with an Admiral Nurse. I did and the tips and strategies she gave me were invaluable.
Things can be really tough, but I know I've got amazing friends, partner and son who I know will help if I need it.
If I can give one piece of advice, speaking from experience, it's this; make sure you find time for yourself because you are important and you can't care for someone else if you don't look after yourself. If you need professional support, speak with an Admiral Nurse. I did and the tips and strategies she gave me were invaluable.
Mandy
My Mum was always a well ro lady who lile to alot of her jobs etc on her own
We would always go to see her and help her when she needed help
But gradually over a period of time num would forget things like leaving Electronic things on like ovens microwave etc
We our it down to age
Then mum would talk and Hallucinatie about things that aren't there also very muddled
Mum wasn't safe in her own home
We tried keeping her at home but we knew Mums safety would be in a home
We visit jer regularly knowing that she is safe and receiving regular meals and personal Hygiene
Mum chats alot to the other residents
In her own way which is really nice to see
When mum thinks my daughter is still at school
Although she is 27yrs old
We go along with her and bot tp always correct her
Keeping her happy is the key
Mum joins in with most activities which is lovely
Sometimes mum remembers things
Then after a short while she will ask again
So we just repeat what we had said
We do have lots of good times with mum
When we go to see mum if she thinks w
We would always go to see her and help her when she needed help
But gradually over a period of time num would forget things like leaving Electronic things on like ovens microwave etc
We our it down to age
Then mum would talk and Hallucinatie about things that aren't there also very muddled
Mum wasn't safe in her own home
We tried keeping her at home but we knew Mums safety would be in a home
We visit jer regularly knowing that she is safe and receiving regular meals and personal Hygiene
Mum chats alot to the other residents
In her own way which is really nice to see
When mum thinks my daughter is still at school
Although she is 27yrs old
We go along with her and bot tp always correct her
Keeping her happy is the key
Mum joins in with most activities which is lovely
Sometimes mum remembers things
Then after a short while she will ask again
So we just repeat what we had said
We do have lots of good times with mum
When we go to see mum if she thinks w
Rachel Munns
My dear paternal grandmother, a retired Welsh schoolteacher, was fine in the summer of 1969, but by the winter of 1970 she was suffering from unspecified dementia. My mother was diagnosed with Alzheimer’s in 2001 and by 2009 did not recognise me, her eldest son. When reminded, she said , “Oh yes, you were the good one.” That raised a few smiles among the congregated family members present, because as a teenager, I got into trouble more than a few times. Those losses made me choose to become a clinical neuropsychologist in the Care of the Elderly department in an NHS psychiatric hospital.
David
I am writing about my wife Wendy. Wendy was diagnosed with this terrible disease, lewy body dementia. My wife of 63 years passed away in February this year. She suffered badly with hallucinations, dreams and confusion. She was a lovely lady who throughout her time supported many different charities and now it’s my turn to support Alzheimer’s whenever possible.
Richard
Our lovely Mum (to seven of us) developed Dementia quite slowly but for the last ten years of her life (after our father died) was unable to live on her own and lived with one of my sisters. The Alzheimer's Society was such a great help - they offered support courses for members of the family and one to one social support, plus 'Singing for the Brain' - a weekly opportunity for her to enjoy singing again.
Catherine
My story is a well worn, common tale of a man with superb wit and intelect, becoming a virtual shell who had no idea what day it was, let alone who I and my sisters were.. It's terrible when death becomes a blessed release l
Gordon
My wife Linda was diagnosed with semantic dementia about three years ago she used to be ever so clever,she baked cakes to make money for various charities but now she can't remember anyone's name and she doesn't know how to cook anything from scratch at the moment she is not to bad I am her carer and would not have it any other way.
David
my aunt died of dementia, now my dads got it i went to see him 2weeks ago, after chatting for 20mins, he said, ive got a son like you, are you my son, youll never know how much that hit me, hes now in a care home
michael
My lovely dad had dementia for roughly 12 years ! It was devastating to watch my once strong hero of a dad become so frail and scared of what was happening to him !!! We need to get a cure for this dreadful disease which takes your loved one twice
Arlene
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However you’ve been affected by dementia, this is a place for you to share your Forget Me Not story with other people who get it.