Sadly too many friends and family have been taken to this cruel disease. My mother faded gently away to vascular dementia 16 years ago, and we have just been to the...
When my stepdad was 61 he was diagnosed with Alzheimer's. He fought bravely for 17 years. When organising his funeral I noticed my 78 year old mum was struggling and...
This is my story of an incredible person i first met 50 years ago through work, he took me under his wing and neutered me in aspects of life and work, along with his...
My mum is was diagnosed with vascular dementia and Alzheimer’s in 2016
In 2018 my Dad was admitted to hospital as his prostate cancer had advanced to his spine...
Remembering Penny Bates who died on February 13 th 2026
She was a dear friend and many years a member of the WI - much missed for her generosity , love if life and a...
My husband was diagnosed with mixed type dementia about 8 years ago and died in a care home 2 years ago. I managed to keep him at home for 6 years. I can remember...
My name is Ben, I was diagnosed with Alzheimer's dementia roughly 18 months ago, I was 45 when I got the diagnosis.
I just wanted to go on record as thanking ADSS...
My wife Penny was a fun loving 67 year old beauty who...
My unbelievable Dad passed away. It would have been a...
My mum, Mavis, was a strong, intelligent, funny and...
My mum had Alzheimer’s for 11 years, where we lost...
We recently lost our beautiful mam Pat, to this cruel...
Sadly too many friends and family have been taken to this cruel disease. My mother faded gently away to vascular dementia 16 years ago, and we have just been to the memorial service of another good friend who hasn't known us for several years. Her devoted husband looked exhausted. In between, cousins, school friends and neighbours have all gone that way. Please let research find a way to stop this happening. Longevity is not always a good thing but wonderful for those of sound mind.
Veronica
When my stepdad was 61 he was diagnosed with Alzheimer's. He fought bravely for 17 years. When organising his funeral I noticed my 78 year old mum was struggling and very panicky with the details of it all so it was left to me to sort everything. Shortly after I contacted the GP and started the process of getting mum tested. Mum has Vascular Dementia. Sadly mum is now in full time care. These destructive diseases have affected two amazing people and their families for the last 19 years.
Ann
This is my story of an incredible person i first met 50 years ago through work, he took me under his wing and neutered me in aspects of life and work, along with his beautiful wife Carole and my wife Linda we enjoyed social events and had such the best times, always having a laugh and playing practical jokes, he was a very talented football and squash player and no matter where you went he would know someone. Thank you Billy xxx
Jim
My mum is was diagnosed with vascular dementia and Alzheimer’s in 2016
In 2018 my Dad was admitted to hospital as his prostate cancer had advanced to his spine after I sat with my Dad until he passed my I went to break the news to my mum. In this two weeks her memory of his was lost and after being married for more than 60 years she barley acknowledges his death
Despite her and dads wishes to keep her at home after three months I was seriously struggling and after doctors advice she was mover to the excellent care home of Brendon care
She started to me interactive and chattery and her eating improved
In 2019 on a visit from my brother we sat with her and there was a very brief recognition and smile form her as she looked at us both
On the Friday before lockdown in 2020 when I arrived to visit she smiled at me in recognition. She could not say I was her daughter of my name as those connections were lost but it was a smile of recognition
After that her face and eyes were always blank and for the next four years she just existed
Her finally passing was January 21st 2024
Dementia took her ability to live but not her life
In 2018 my Dad was admitted to hospital as his prostate cancer had advanced to his spine after I sat with my Dad until he passed my I went to break the news to my mum. In this two weeks her memory of his was lost and after being married for more than 60 years she barley acknowledges his death
Despite her and dads wishes to keep her at home after three months I was seriously struggling and after doctors advice she was mover to the excellent care home of Brendon care
She started to me interactive and chattery and her eating improved
In 2019 on a visit from my brother we sat with her and there was a very brief recognition and smile form her as she looked at us both
On the Friday before lockdown in 2020 when I arrived to visit she smiled at me in recognition. She could not say I was her daughter of my name as those connections were lost but it was a smile of recognition
After that her face and eyes were always blank and for the next four years she just existed
Her finally passing was January 21st 2024
Dementia took her ability to live but not her life
Linda Roach
Remembering Penny Bates who died on February 13 th 2026
She was a dear friend and many years a member of the WI - much missed for her generosity , love if life and a ready smile. RIPX
She was a dear friend and many years a member of the WI - much missed for her generosity , love if life and a ready smile. RIPX
Judy Gillespie
My husband was diagnosed with mixed type dementia about 8 years ago and died in a care home 2 years ago. I managed to keep him at home for 6 years. I can remember telling my GP that there were 26 hours in my day, she gave me a strange look and I said no I had not made a mistake someone had definitely added a couple on for me. Difficult times, I've found myself again. It took a little while but I'm there. Will keep supporting Alzheimer's Research Society as both my daughter and myself think this is the way forward.
Maureen
My name is Ben, I was diagnosed with Alzheimer's dementia roughly 18 months ago, I was 45 when I got the diagnosis.
I just wanted to go on record as thanking ADSS who are a group of wonderful commited professionals who have helped me immeasurably in dealing with my diagnosis.
I have made my peace with what will happen further down the line.
However my message is that I live my life to the full as everyone else would.
I live a positive life.
Ben
I just wanted to go on record as thanking ADSS who are a group of wonderful commited professionals who have helped me immeasurably in dealing with my diagnosis.
I have made my peace with what will happen further down the line.
However my message is that I live my life to the full as everyone else would.
I live a positive life.
Ben
Ben
My wife Penny was a fun loving 67 year old beauty who loved going on holidays, which we did 5-6 times a year. COVID came and when the second vaccination was done she had the Astra Zeneca one, I had Pfizer. 4 days after this I found her screaming on the floor in our kitchen, holding her head. I called the ambulance and she went into hospital for a day. When she came home she was a different person. she didnt know how to turn the cooker on, and this progressed to other things like where she had put things. after attacking me twice we decided a placing in Uckfield hospital ( a specialist unit )was best. now three years later in a care home in Eastbourne she is happy to see me twice a week. I miss her so much.
Stephen Burgess
My unbelievable Dad passed away. It would have been a different passing had he not had dementia . We would have sat,laughed and said things to each other when we knew the time was coming .That was robbed from me by this cruel disease. My heart goes out to all of you going through what I went through. Bless you and keep strong
NB
I always go in the garden in the morning to have my coffee and look up at the sky and talk to him. NEVER LET THEM BE FORGOTTEN XXXX
NB
I always go in the garden in the morning to have my coffee and look up at the sky and talk to him. NEVER LET THEM BE FORGOTTEN XXXX
Victoria
My mum, Mavis, was a strong, intelligent, funny and fierce lady – always full of life, always making things (food, knitting) or busy reading, or doing crosswords or sudoku.
She was diagnosed just before COVID hit, but in reality, she had been struggling for much longer. We as a family had all seen it, but she refused to acknowledge it and masked very effectively when she was in company. Her reality when she was alone, was that she had started drinking to cope with feeling so terrible and her life was in chaos. I felt (and still feel) a tremendous weight of guilt, that I didn’t force the issue and get her help at an earlier stage.
After her diagnosis, she managed at home with support for a few years, but with each passing day, a little more of the light inside her left. She stopped doing things for herself, stopped all the things she loved. Her conversations became one word answers in response to questions, and eventually she began to forget that she’d lost loved ones (my dad, my nan) and would become distressed, wanting to leave to find them.
2 years ago, I was forced to make the decision to move her into care. The first 6 months were unbearable. Her home had been her whole life; leaving that took a major toll on her and she deteriorated significantly. I blamed myself for putting her in that position and for the way she felt.
She is more settled now but that period left its mark on both of us. A lot more of her disappeared – her fight, her soul. I have had to learn that although she will always be my mum, every time I see her she will be a little bit of a changed version of my mum from the last time I was there. She still remembers me (for now – although sometimes she thinks I’m her sister), but I know there will come a day when that is gone too, along with all of her memories of our life together. I will have to hold on to them for the both of us.
She was diagnosed just before COVID hit, but in reality, she had been struggling for much longer. We as a family had all seen it, but she refused to acknowledge it and masked very effectively when she was in company. Her reality when she was alone, was that she had started drinking to cope with feeling so terrible and her life was in chaos. I felt (and still feel) a tremendous weight of guilt, that I didn’t force the issue and get her help at an earlier stage.
After her diagnosis, she managed at home with support for a few years, but with each passing day, a little more of the light inside her left. She stopped doing things for herself, stopped all the things she loved. Her conversations became one word answers in response to questions, and eventually she began to forget that she’d lost loved ones (my dad, my nan) and would become distressed, wanting to leave to find them.
2 years ago, I was forced to make the decision to move her into care. The first 6 months were unbearable. Her home had been her whole life; leaving that took a major toll on her and she deteriorated significantly. I blamed myself for putting her in that position and for the way she felt.
She is more settled now but that period left its mark on both of us. A lot more of her disappeared – her fight, her soul. I have had to learn that although she will always be my mum, every time I see her she will be a little bit of a changed version of my mum from the last time I was there. She still remembers me (for now – although sometimes she thinks I’m her sister), but I know there will come a day when that is gone too, along with all of her memories of our life together. I will have to hold on to them for the both of us.
Jo
My mum had Alzheimer’s for 11 years, where we lost a bit more of her each day.
It is such a cruel disease and she really didn’t deserve this after everything she went through.
She lost her mum at two years and had three siblings and even though she wasn’t the oldest she took it upon herself to have days off school at 8 yrs old to do the washing and care for all her siblings, by cooking cleaning and everything else that was required.
They constantly got put into care but used to escape and run back to their dad.
When she married ,her two brothers moved in with her as her dad died had just died at 52!
She then went on to have three children
So there was 7 of them in small three bedroom terraced home.
Mum juggled three jobs aswell, we were always fed, clean, our house was absolutely spotless.
I remember her telling me that they had to share one pair of shoes .
Mum was very strict (she was quite scary) and extremely houseproud every day the house was cleaned even though she was also riddled with arthritis.
We all had to help.
It was heartbreaking to watch her suffer and for me to loose her, she was unrecognisable from the proud well turned out lady that I knew and loved.
Watching her starve to death, my sister and i had two weeks with her sleeping at Richmond care home where without exception the staff were truly incredible, they loved Sylvie and her warped sense of humour.
Unfortunately she passed the day before Mother’s Day when I wasn’t in the room for which I will always be sad, but as the Carer said she was a difficult woman and would never have passed with you there ,.
when she phoned me on Mother’s Day to say about mum passing she said Mum had given a smile then took her last breathe.
I am now doing the Alzheimer’s 31 mile walk in May and want to raise £250 (hopefully I will smash this target !)
It will be hard as I suffer terribly with osteoarthritis but unlike mum I moan constantly with the chronic illness.
So I have my deep heat ,knee straps,
Water, comfy shoes, my doggo and co codomol.
WISH ME LUCK 🍀
It is such a cruel disease and she really didn’t deserve this after everything she went through.
She lost her mum at two years and had three siblings and even though she wasn’t the oldest she took it upon herself to have days off school at 8 yrs old to do the washing and care for all her siblings, by cooking cleaning and everything else that was required.
They constantly got put into care but used to escape and run back to their dad.
When she married ,her two brothers moved in with her as her dad died had just died at 52!
She then went on to have three children
So there was 7 of them in small three bedroom terraced home.
Mum juggled three jobs aswell, we were always fed, clean, our house was absolutely spotless.
I remember her telling me that they had to share one pair of shoes .
Mum was very strict (she was quite scary) and extremely houseproud every day the house was cleaned even though she was also riddled with arthritis.
We all had to help.
It was heartbreaking to watch her suffer and for me to loose her, she was unrecognisable from the proud well turned out lady that I knew and loved.
Watching her starve to death, my sister and i had two weeks with her sleeping at Richmond care home where without exception the staff were truly incredible, they loved Sylvie and her warped sense of humour.
Unfortunately she passed the day before Mother’s Day when I wasn’t in the room for which I will always be sad, but as the Carer said she was a difficult woman and would never have passed with you there ,.
when she phoned me on Mother’s Day to say about mum passing she said Mum had given a smile then took her last breathe.
I am now doing the Alzheimer’s 31 mile walk in May and want to raise £250 (hopefully I will smash this target !)
It will be hard as I suffer terribly with osteoarthritis but unlike mum I moan constantly with the chronic illness.
So I have my deep heat ,knee straps,
Water, comfy shoes, my doggo and co codomol.
WISH ME LUCK 🍀
Tracey
We recently lost our beautiful mam Pat, to this cruel disease, but we refuse to allow it to define who she really was.
Mam was a beautiful baker and cook, she was the kindest soul and a lifelong supporter of the Donkey Sanctuary....we took her to visit her beloved donkeys!
She loved days out and going for coffee and cake, dancing around the kitchen to her favourite music and adored Christmas.
We managed to enjoy all of those things with her until the very end.
She is the centre of our family, the essence of love and peace and leaves a legacy of unconditional love.
We will miss her forevermore ❤️ xxxx
Mam was a beautiful baker and cook, she was the kindest soul and a lifelong supporter of the Donkey Sanctuary....we took her to visit her beloved donkeys!
She loved days out and going for coffee and cake, dancing around the kitchen to her favourite music and adored Christmas.
We managed to enjoy all of those things with her until the very end.
She is the centre of our family, the essence of love and peace and leaves a legacy of unconditional love.
We will miss her forevermore ❤️ xxxx
Lisa
Share your story
However you’ve been affected by dementia, this is a place for you to share your Forget Me Not story with other people who get it.