Kim Lees, Senior Editor for accessible resources, invites you to help make our information more accessible by joining our Reader panel.
At Alzheimer’s Society, we want to make sure everyone can access and understand information about dementia.
This goes beyond making sure people can get information for themselves and the people around them. It’s about promoting independence and inclusion too.
Ultimately, access to reliable information can lead people to an earlier dementia diagnosis and to get the kind of support that’s right for them.
All too often, people with a disability or sensory impairment aren’t able to access important health information, and the same is true for people who don’t speak English. This problem isn’t theirs to solve, it’s ours.
Your information, your way
As well as our usual print publications and online articles, a lot of our information is available in other formats:
- Translations into different languages.
- Easy Read, for people with learning disabilities.
- British Sign Language (BSL) videos on our website and on DVD.
- Audio versions available online and on CD.
- Large print.
You can access these online or we can post them to you. We plan to add new translations, audio and video so that more people can access more information.
The people who need these other formats are a diverse group. For example, a Deaf person who uses BSL as their first language has different experiences to someone who manages their hearing loss using a hearing aid.
That’s why we tailor our information and not just the format it’s delivered in. To do this effectively, we need to create content with people and not just for them – ‘Nothing about us without us,’ as the disability rights slogan says.
Learning from people’s lived experiences ensures our information is both relevant and culturally appropriate. It can also help us to tackle the myths and misinformation that make it much harder for some people to get a helpful diagnosis.
Whether it’s through focus groups, surveys or individual feedback, we create as many ways as we can for people to feel confident about sharing their honest opinions.
Join our panel
Everyone’s experience of dementia is unique. It’s important for our information to reflect this by including people with different backgrounds, needs and communication requirements.
You can help us do this by joining our Reader panel. As part of this panel, you would give us feedback about our information and help us make it better.
You can feedback in the way that suits you best, whether that’s online, over the phone or on printed copies.
Anyone affected by dementia is welcome to join the panel, including people living with dementia and their relatives, friends and carers. We know everyone has different availabilities, so you can take part as much or as little as you are able to.
If you’re interested in taking part in our Reader panel, please email us for more information.