Q and A: John Holt

What’s changed most since your diagnosis?

I don’t have the same life as before but make the best of it. If it was just the dementia, I would still be able to go to the gym and swim, but not with my other conditions (spinal stenosis, angina, Crohn’s disease and macular degeneration). I keep my independence as much as I can.

What would you take to your desert island?

I’ve always liked Johnny Cash, and I’m learning ‘Hurt’ for Singing for the Brain. He had a tough life. Because you know what he’s gone through, you know what he’s singing about. You can’t copy something like that – you’ve got to do it in your own way.

How has Alzheimer’s Society helped you?

I enjoy the Focus on Dementia Network, which has led to other things. I was interviewed at a local charity for people who are visually impaired – blind people can also have dementia. Doing things for Alzheimer’s Society has given me confidence. It keeps me thinking.

What is your most treasured possession?

I don’t own them, but my family and friends. I don’t think I could do without them. My wife supports me and helps me through things. Everybody gets dark days and your family gets you out of that. I was in London with my 12-year old grandson and I was struggling with walking. He said, ‘Don’t worry, I’m not going to leave you.’

Next steps

• Email us if you have dementia and would like to answer our questions for a future column.
• Read more articles from Dementia together magazine.