Fix Dementia Care: Funding

To Fix Dementia Care the Government must invest in a new system that ends catastrophic care costs for families. Read what we're calling for.

Social care funding - what's the problem? 

With few treatments available for people living with dementia and no cure in sight, social care is the majority of care people will get after a dementia diagnosis. It means basic support to eat, wash, dress and take their medication. For most people, this kind of quality care is actually the only form of treatment they have available.

People with dementia are the largest users of social care: 70% of care home places are occupied by people with dementia, and 60% of people receiving homecare have dementia.

This means that social care is undeniably a dementia issue. When we are talking about social care, we are essentially talking about dementia care.

Chronic underfunding

The common problems within health and care that we are tackling with our sustained Fix Dementia Care campaign around delayed hospital discharge, emergency admissions, and unmet needs, are all symptomatic of a chronic underfunding of the health and social care system. 

This is the root problem we need to fix.

We've heard of pensioners having to borrow money for food as their pension was going to top up their wife's care, as the Local Authority could not meet the cost. And these are people below the means test threshold, who should be entitled to support,

In addition,  individuals above the means test threshold with more than £23,250 in assets, because they might own a house, are paying hundreds of thousands of pounds and there is no limit to how much you might have to pay for care. Unfortunately, their bills are even higher, as they are cross-subsidising the under-funded Local Authority (LA) care home residents, as the LAs can’t meet the cost.

What we are calling for?

To Fix Dementia Care the Government must invest in a new system that:

  • Upholds the rights people living with dementia have through health, care and equalities legislation
    Maintains quality of life and care for all people with dementia, upholding the rights they have under the Care Act, Social Services and Wellbeing Act (Wales), Equalities Act and Mental Capacity Act. Legislation should empower and enable people affected by dementia to access the support to which they are entitled, regardless of their condition.

  • Ends catastrophic care costs for families 
    While some people with dementia may make some contribution towards the cost of their care, this is a fair amount which has a financial limit and does not impact on their wellbeing or ability to live a normal life.  No individual should have to spend everything they have on care. 

  • Connects the price paid for quality dementia care with what it costs to deliver 
    The cost of delivering a sustainable care system, provided by professionals confident and competent to deliver quality dementia care, must have a close, transparent connection to the price that is paid, regardless of how that care is commissioned. The impact of cost cutting on the health and wellbeing of someone with dementia, in addition to the impact on the wider health and care system and workforce must be a consideration of the price paid for care.

  • Means that dementia care is joined up 
    Any future care system should enable people with dementia to access seamless support without divisions across health and care services causing a negative impact on their experience of care.

  • Ends the inequity of support between dementia and other conditions
    People with dementia should not receive less support, increased charges and costs nor face challenges accessing care or unfair situations based on age or the increased need for social care as a result of developing dementia.

Join the campaign now. 

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