Young-onset dementia | Alzheimer's Society

Laury’s story: ‘Mum became utterly lost in the fog of her own mind’

Jacquelyn was 57 when she was diagnosed with early-onset Alzheimer’s disease. Here, her daughter Laury describes the dementia journey in detail – from spotting the early signs, to the final stages – and shares what she’s learned from it.

Debbie's story: 'Not enough people are aware of early onset dementia, never mind understand it'

At 50 years old, Debbie was told that she had mixed dementia. Following her diagnosis, the stigma surrounding dementia has had a significant impact on her life. But Debbie believes people’s attitudes towards people affected by dementia can be changed.

16 September 2019

Incontinence and dementia: 'It’s embarrassing. We need more awareness and more help’

Amanda Quinn wasn’t aware that incontinence could be a symptom of dementia when she was diagnosed with Alzheimer’s disease aged 49. Read her story and why she feels the taboos around toilets must be broken.

Betty’s Memory Walk story: ‘Alzheimer's robbed us of a very beautiful, independent soul’

Betty is taking part in Memory Walk for her younger sister, Patricia, and their late mother. Here, Betty reflects on their journey to a dementia diagnosis, and why Memory Walk is so important to her and her family.

Peter's story: 'When I cycle, I push my dementia away'

Peter, who is living with dementia, leads a healthy lifestyle and takes care of his well-being. With the help of his friend, Deb, Peter has penned his thoughts about his passion for cycling.

Neil's story (part two): 'I fought to keep Mum at home for as long as I could'

Five months ago, we heard from Neil who shared his story about caring for his mum, Yvonne. Here, Neil updates us on how they're both doing as Yvonne's condition progresses.

Leanne's story: 'Mum still recognises my face, yet doesn't know my name.'

Leanne's mum Hilary was diagnosed with young-onset dementia. Here, she shares her family's story and her feelings throughout their journey, from the initial signs that something was wrong to becoming a carer for her mum.

Book group: Dear Alzheimer’s by Keith Oliver

We hear readers’ comments about the latest book from a leading dementia advocate and Society Ambassador.

High LDL linked to early-onset Alzheimer's – Alzheimer’s Society comment

Researchers with the Atlanta Veterans Affairs Medical Center and Emory University have found a link between high LDL cholesterol levels and early-onset Alzheimer's disease.

Work and dementia: How to tell your employer about your diagnosis

Many people living with dementia may want to continue working. Read about your rights in the workplace and how to talk to your employer about the condition.

Robert's story: Why I became a Research Network volunteer

Robert cared for his mother, who had frontotemporal dementia, until she passed away. Here Robert shares why he's passionate about dementia research and hopes other carers will get involved, too.

Neil's story: 'I want to protect Mum till the very end.'

A diagnosis of young-onset dementia can turn lives upside down. But for Neil and his mum, Yvonne, their special bond remains strong. Neil shares the new challenges facing them as Yvonne's condition progresses.

22 February 2019

'Void' in care for those diagnosed with early onset dementia – Alzheimer’s Society comment

Families are being 'devastated' by a 'void' in care provided for people who develop dementia under the age of 65, according to a leading nurse.