Young-onset dementia | Alzheimer's Society

You’re not alone: Keeping in touch and having a say, despite dementia and coronavirus

Diagnosed with dementia while still in her 40s, Amanda Quinn wants others to know they have a voice.

Platform for change: Standing up for people affected by dementia

Inspired by her father, Nimisha Sharma has been sharing her family’s story to raise the profile of dementia.

Dealing with loss during coronavirus: ‘Early onset dementia took mum from us in 18 months’

Bethan’s mum, Sharon, was diagnosed with Alzheimer’s disease aged just 56. Bethan reflects on how quickly her mum’s condition progressed and her fundraising plans to help other people affected by dementia.

Life during lockdown: ‘I can’t wait for this to be over so I can hug my dad again!’

Alex’s dad, Dave, was diagnosed with early onset dementia eight years ago at the age of 60. Alex reflects on how her dad came to terms with his diagnosis, and how the coronavirus pandemic has affected their relationship.

Change the journey: Moving from fear to hope after a dementia diagnosis

Having feared the worst after his dementia diagnosis, Masood Qureshi is now focused on changing people’s perceptions.

Rachel's story: 'We were told we simply had to wait for a "crisis point".'

When Rachel's dad Paul started acting differently, she and her sisters convinced him to visit his GP. Eventually, Paul was diagnosed with frontotemporal dementia (FTD) or Pick's disease. He now lives in a residential care home that suits his needs.

25 February 2020

Even more determined: Looking forward to Trek26

A supporter in Lancashire was so inspired by last year’s Trek26 that she’s set to do it again in 2020.

31 January 2020

Laury’s story: ‘Mum became utterly lost in the fog of her own mind’

Jacquelyn was 57 when she was diagnosed with early-onset Alzheimer’s disease. Here, her daughter Laury describes the dementia journey in detail – from spotting the early signs, to the final stages – and shares what she’s learned from it.

20 September 2019

Debbie's story: 'Not enough people are aware of early onset dementia, never mind understand it'

At 50 years old, Debbie was told that she had mixed dementia. Following her diagnosis, the stigma surrounding dementia has had a significant impact on her life. But Debbie believes people’s attitudes towards people affected by dementia can be changed.

16 September 2019

Incontinence and dementia: 'It’s embarrassing. We need more awareness and more help’

Amanda Quinn wasn’t aware that incontinence could be a symptom of dementia when she was diagnosed with Alzheimer’s disease aged 49. Read her story and why she feels the taboos around toilets must be broken.

Betty’s Memory Walk story: ‘Alzheimer's robbed us of a very beautiful, independent soul’

Betty is taking part in Memory Walk for her younger sister, Patricia, and their late mother. Here, Betty reflects on their journey to a dementia diagnosis, and why Memory Walk is so important to her and her family.

Peter's story: 'When I cycle, I push my dementia away'

Peter, who is living with dementia, leads a healthy lifestyle and takes care of his well-being. With the help of his friend, Deb, Peter has penned his thoughts about his passion for cycling.

Neil's story (part two): 'I fought to keep Mum at home for as long as I could'

Five months ago, we heard from Neil who shared his story about caring for his mum, Yvonne. Here, Neil updates us on how they're both doing as Yvonne's condition progresses.