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Real stories Making sure healthcare students understand the realities of life with dementia Chris shares how he and his wife, Susan, draw on their own experience of posterior cortical atrophy to improve future care and support. Chris shares how he and his wife, Susan, draw on their own experience of posterior cortical atrophy to improve future care and support. ... 28 March 2023
Real stories Problem solving with posterior cortical atrophy (PCA) Martina Davis in Cumbria, aged 64 with posterior cortical atrophy (PCA), explains how she deals with the challenges of this rarer form of dementia. Martina Davis in Cumbria, aged 64 with posterior cortical atrophy (PCA), explains how she deals with the challenges of this rarer form of dementia. ... 01 December 2022
Research Sir Terry Pratchett and his rare Alzheimer's diagnosis Read about Sir Terry Pratchett's dementia diagnosis of posterior cortical atrophy (PCA), a rare type of Alzheimer's disease. Read about Sir Terry Pratchett's dementia diagnosis of posterior cortical atrophy (PCA), a rare type of Alzheimer's disease. ... 18 February 2022
Real stories Combatting the symptoms of posterior cortical atrophy: ‘I’m still me’ Edward Bushnell in Oxfordshire, who is 62 and has posterior cortical atrophy, says he has ‘no alternative’ but to be positive. He explains how he manages his symptoms. Edward Bushnell in Oxfordshire, who is 62 and has posterior cortical atrophy, says he has ‘no alternative’ but to be positive. He explains how he manages his symptoms. ... 30 July 2021
News Supernova's director Harry Macqueen on the film's touching depiction of dementia Supernova is a heartfelt modern love story from writer and director Harry Macqueen. In this romantic drama, actors Colin Firth and Stanley Tucci portray a couple dealing with the young-onset diagnosis of Posterior Cortical Atrophy (PCA). Supernova is a heartfelt modern love story from writer and director Harry Macqueen. In this romantic drama, actors Colin Firth and Stanley Tucci portray a couple dealing with the young-onset diagnosis of Posterior Cortical Atrophy (PCA). ... 09 July 2021 1comment.
Real stories ‘I can be Ann's voice in the wider world' - campaigning to cure the care system Graeme’s partner Ann lives with Posterior Cortical Atrophy, a rare form of Alzheimer’s disease which affects vision and spatial awareness. Graeme has experienced the social care system inside out, and is calling on Government to cure the care system now. Graeme’s partner Ann lives with Posterior Cortical Atrophy, a rare form of Alzheimer’s disease which affects vision and spatial awareness. Graeme has experienced the social care system inside out, and is calling on Government to cure the care system now. ... 28 June 2021 53comments.
Real stories In lockdown with a rarer dementia: ‘I’ve changed’ Michael Andrews in Bradford, originally from Northern Ireland, is 61. He tells us about life with posterior cortical atrophy (PCA), a type of dementia, during lockdown. Michael Andrews in Bradford, originally from Northern Ireland, is 61. He tells us about life with posterior cortical atrophy (PCA), a type of dementia, during lockdown. ... 01 February 2021
Information How we can help: Finding others who really understand your situation Share experiences and advice with other people whose lives are affected by dementia on our online community Talking Point. Share experiences and advice with other people whose lives are affected by dementia on our online community Talking Point. ... 01 June 2020
Real stories Going to the gym and staying active when you have dementia Tracey, who has dementia, has seen an improvement in her health and wellbeing since going to the gym. Tracey hopes other people with dementia will benefit from physical activities, like she has, by visiting sports clubs and leisure centres. Tracey, who has dementia, has seen an improvement in her health and wellbeing since going to the gym. Tracey hopes other people with dementia will benefit from physical activities, like she has, by visiting sports clubs and leisure centres. ... 12 February 2019 5comments.
Real stories We are the storm: The power of a shared voice Nigel Hullah, a former human rights lawyer who now has dementia, wants everyone affected by the condition to have their say. Nigel Hullah, a former human rights lawyer who now has dementia, wants everyone affected by the condition to have their say. ... 30 November 2018 21comments.
Real stories Ni yw’r storm: Grym rhannu llais Mae Nigel Hullah, cyn-gyfreithiwr hawliau dynol sydd bellach gyda dementia, am i bawb sydd wedi cael eu heffeithio gan y cyflwr gael dweud eu dweud. Mae Nigel Hullah, cyn-gyfreithiwr hawliau dynol sydd bellach gyda dementia, am i bawb sydd wedi cael eu heffeithio gan y cyflwr gael dweud eu dweud. ... 30 November 2018 0comments.
Real stories Strain on the family: A daughter shocked by what she has seen We meet Louise Thomson, who had to care for her mother while raising a young family. We meet Louise Thomson, who had to care for her mother while raising a young family. ... 01 June 2018 9comments.
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