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Information Supernova's director Harry Macqueen on the film's touching depiction of dementia Supernova is a heartfelt modern love story from writer and director Harry Macqueen. In this romantic drama, actors Colin Firth and Stanley Tucci portray a couple dealing with the young-onset diagnosis of Posterior Cortical Atrophy (PCA). 09 July 2021 1
Real stories ‘I can be Ann's voice in the wider world' - campaigning to cure the care system Graeme’s partner Ann lives with Posterior Cortical Atrophy, a rare form of Alzheimer’s disease which affects vision and spatial awareness. Graeme has experienced the social care system inside out, and is calling on Government to cure the care system now. 28 June 2021 50
Real stories In lockdown with a rarer dementia: ‘I’ve changed’ Michael Andrews in Bradford, originally from Northern Ireland, is 61. He tells us about life with posterior cortical atrophy (PCA), a type of dementia, during lockdown. 01 February 2021 4
Information How we can help: Finding others who really understand your situation Share experiences and advice with other people whose lives are affected by dementia on our online community Talking Point. 01 June 2020 0
Real stories Going to the gym and staying active when you have dementia Tracey, who has dementia, has seen an improvement in her health and wellbeing since going to the gym. Tracey hopes other people with dementia will benefit from physical activities, like she has, by visiting sports clubs and leisure centres. 12 February 2019 5
Research Improving coordination in Posterior Cortical Atrophy and Alzheimer’s disease Research project: Developing strategies to support reaching and coordination for individuals living with Alzheimer’s disease
Real stories We are the storm: The power of a shared voice Nigel Hullah, a former human rights lawyer who now has dementia, wants everyone affected by the condition to have their say. 30 November 2018 21
Real stories Ni yw’r storm: Grym rhannu llais Mae Nigel Hullah, cyn-gyfreithiwr hawliau dynol sydd bellach gyda dementia, am i bawb sydd wedi cael eu heffeithio gan y cyflwr gael dweud eu dweud. 30 November 2018 0
Research Understanding how Posterior Cortical Atrophy affects the brain Research project: Posterior cortical atrophy; a pathological characterisation.
Real stories Strain on the family: A daughter shocked by what she has seen We meet Louise Thomson, who had to care for her mother while raising a young family. 01 June 2018 7
Advice Symptoms of Alzheimer's disease The symptoms of Alzheimer’s disease are generally mild to start with, but they get worse over time and start to interfere with daily life. Read how the symptoms can progress.
Real stories Noticing the signs and stages of Posterior Cortical Atrophy (PCA) Watch this short film about Posterior Cortical Atrophy (PCA) and read Lori's story about noticing the signs of PCA in her husband, John. 19 April 2018 9
