Real stories
Thelma Gray was diagnosed with dementia in the early 90s and found a total lack of support. Her eldest daughter, Barbara, explains how her family’s story is motivating her to raise awareness among Black, Asian and other Minority Ethnic communities.
Real stories
David has looked after his wife Catriona, who has dementia, for seven years. But the national coronavirus lockdown meant their network of services fell away. Here, he reflects on the impact of coronavirus on people affected by dementia.
Real stories
Janet moved in with her mum, Dorothy, who has mixed dementia, to be her sole carer. The coronavirus pandemic has seen all their support and social contact drop away. Now, Janet is calling on Government to address the needs of people affected by dementia.
Real stories
Vesna Okaikoi had a difficult childhood, not knowing who her parents were and growing up in foster care alongside her twin sister, Loraine. Now 65 years old and living with vascular dementia, Vesna reflects on the power of identity and how learning about her heritage has been a source of strength through challenging times.
Real stories
Jag has been caring for her mum for eight years, fighting for culturally appropriate care. The pandemic has made their struggles even worse, denying her mum essential care and having a huge detrimental effect on Jag’s own wellbeing.
Real stories
Ronald Amanze has often felt culturally misunderstood when receiving dementia support. Inspired by Black history and the reggae music that shaped his early years, Ronald explains how culture can be a special tool to get people talking about dementia.
Real stories
Melanie's mom was diagnosed with dementia six years ago. Known affectionately as 'Nini' by her grandchildren, Melanie's family have found it very painful to watch her dementia progress. Melanie has shared a beautiful tribute in writing to Nini with us titled 'Hands'.
Real stories
When primary school teacher Marie had trouble remembering words, she thought her memory loss was due to menopause. She didn’t think that at 51 she would be diagnosed with dementia. Now Marie and her family want to help raise awareness.
Research
For Black communities in the UK there is a greater risk of dementia, but support is typically accessed later in the journey. Alzheimer's Society is funding researcher Moïse Roche to understand the cultural factors behind these statistics, and how dementia services can meet the needs of Black African and Black Caribbean people.
Real stories
Robert Crowley lost his wife Julie to dementia last year. Dealing with his grief, Robert used his experiences as a carer to create an album of music that he hopes can help others in the same position.
Research
We shine a spotlight on three researchers, funded by Alzheimer’s Society, who are furthering our understanding of how different ethnic groups and communities are affected by dementia.
Real stories
Tommy was diagnosed with early-onset Alzheimer’s in 2011 when he was in his 60s. He reflects on how keeping active helped him cope with his dementia diagnosis and how he's supporting the We Are Undefeatable campaign.