What we think about social care
Learn about our position on the current social care system and our calls for action on funding, workforce strategy and support for unpaid carers.
The importance of social care to people with dementia
Social care cannot continue as it is. A large proportion of those needing care have dementia - best available modelling suggests that around 70% of residents of older age residential care in England have dementia.
The scale of care need
- Dementia prevalence in the UK is set to increase from 982,000 people today to 1.4 million people by 2040.
- Associated costs of £42 billion today are estimated to rise to £90 billion by 2040.
- An additional 106,000 people with dementia are projected to be living in a residential or nursing home by 2040.
This challenge is significant, but not impossible
Governments can, and must, make progress by listening to people living with dementia and those who care for them, and implementing our recommendations on dementia training, workforce planning, support for unpaid carers and a fairer funding system.
The changes we need to see in social care must come from:
Governments in England, Wales and Northern Ireland must introduce a statutory duty for all care providers registered with the relevant regulatory body in each nation to ensure their care staff undertake dementia training.
Content of the training must also align with the relevant national dementia frameworks and should be underpinned by sufficient funding.
National governments should also implement a long-term social care workforce strategy to foster a sustainable and supported workforce to deliver high-quality, personalised care. Strategies should include fair pay and a clear career development pathway.
When commissioning adult social care services, local authorities in England and Wales, and Health and Social Care Trusts in Northern Ireland, should include a contractual provision obliging care providers to ensure care staff undertake dementia training mapped to the relevant national framework in each nation.
When sourcing and implementing training, local authorities in England and Wales, Health and Social Care Trusts in Northern Ireland, and care providers should factor in all five key components for impactful dementia training. This are set out in our report ‘Because we’re human too: Why dementia training for care workers matters and how to deliver it’. This is in addition to ensuring that the content of the training is aligned with the relevant national framework in each nation.
Unpaid dementia carers
Unpaid carers are fundamental to the social care system, yet their contributions often go unnoticed and unsupported.
In total, the economic value of the care unpaid carers of people living with dementia provide, together with the opportunity cost of hours of work foregone, is £21.1 billion in the UK.
Support for carers
Our advice on caring for someone with dementia and on accessing the support you need to look after yourself. Find out about your health and social care options here.
The scale of care being provided by unpaid carers
- There are approximately 1.8 million people providing some form of care and support for people with dementia in England.
- In Wales, there are approximately 310,000 unpaid carers, an increase of 16.7% since 2001.
- There are over 290,000 people providing some form of unpaid care in Northern Ireland.
In our recent survey of people living with dementia and their carers across England, Wales, and Northern Ireland, one in seven carers were not aware of any sources of support, while 46% don’t know who to contact to find out how to access social care support. Of those who know or care for someone living with dementia, just three in ten (31%) agree that social care support for dementia is easy to access.
With the challenges carers can face, dementia specific respite care - short-term residential care for people living with dementia - should let carers take breaks and manage their own wellbeing. Yet, only 23% of unpaid carers for people with dementia we recently surveyed reported to know about dementia specific respite breaks, and only 7% have used them.
The change we need to see for dementia carers
Any National Carers’ Strategy introduced in England or Northern Ireland, and any refresh of the National Carers Strategy in Wales, must include a focus on ensuring unpaid carers are receiving the needs assessments that they’re entitled to by law and have sufficient access to dementia-specific respite care.
Investment and funding
In the UK, the annual cost of social care for people living with dementia is over £17.2 billion. These costs are projected to rise over the next two decades to £40.7 billion by 2040.
Social care systems in England, Wales and Northern Ireland are under huge pressure, and the financial burden often falls too heavily on individuals.
Significant investment in social care is long overdue and would help ensure people with dementia receive the high-quality care they deserve, boost national and local economies, and relieve pressure on health services.
The change we need to see for investment and funding
Governments across the UK must introduce long-term sustainable investment into social care, with a shift to multi-year funding settlements to enable long-term planning, improvement, and innovation.
Governments should also ensure that the funding model for social care pools the risk of care costs across society, easing the financial burden on individuals and their families.
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Alarmingly, too few care staff are trained in dementia, impacting the quality of care. In England, data from Skills for Care shows that around a third of the workforce have received any form of dementia-specific training. In Northern Ireland and Wales, there’s currently no national data on dementia training uptake.
Our recent survey of 3,487 people who are close to someone with dementia or living with symptoms across England, Wales and Northern Ireland identified that around a quarter are dissatisfied with the social care support that is available. When asked what the best opportunities for improvement for people whose lives are impacted by dementia, 56% of people said professional care workers who are more skilled in caring for those with dementia.
Low levels of dementia training are concerning and negatively impact quality of care, as set out in the 2024 State of Care report by the Care Quality Commission. Our report Because we’re human too, shows that high quality dementia training for care staff delivers significant benefits to people living with dementia and their carers, to care staff and providers and the wider heath and care system.