My husband was diagnosed with Primary Progressive...
My darling Sally and I were approaching retirement and making plans for travel and visiting our children, family and friends. Then Sally started forgetting how to do...
I was a psycho-geriatric nurse. My mother developed vascular dementia and entered a nursing home when my dad, her main carer died. Lost her in 2012. Now both my...
A woman sat in a chair
My big sister Gwen had dementia and passed away 2...
A woman with short blonde hair and white patterned top
My wife began forgetting small things in her...
A man wearing a light blue shirt sat at a table
My husband was diagnosed in May 2024 with Lewy Body...
My Mum 84 and my best friend 63 who was a nurse had dementia and I had so much help and respect from lots of people involved Thanks everyone
I lost my dear brother Dennis in March this year.My sister-in-law did so well in caring for him until it became impossible and he had to go into a nursing home.Such a...
My stepmother was an accomplished sportswoman, teacher, author, film-maker, journalist and an extremely loving wife to my father. She developed dementia before he...
My mother Anne and 2 sisters Frances and Caroline suffered from Alzheimer's. Caroline was carer for our mother, Frances was cared for by her husband and family and I...
I looked after my husband Kenneth Morrison for 16...
Both my parents died of Alzheimers and I currently have two sisters, younger than myself, in care homes suffering from dementia. Sad.
My husband was diagnosed with Primary Progressive Aphasia a rare form of dementia, same as Bruce Willis back in 2025. He had problems finding words initially and he went to the doctors who said he needed a hearing aid at the beginning of 2023. This went on for another year before we saw a fantastic Doctor who straight away sent him for an mri scan because he recognised the symptoms and then referred him to a neurologist. The waiting time was 9 more months and the neurologist referred him to the University College Hospital for Neurology to work out which dementia he had. He was finally diagnosed in May 2025 with a mix of non fluent/logopenic primary progressive aphasia. There is no cure as yet and nothing to slow it down and now 2 years on my husband is really showing signs and has progressed quite fast and now has huge problems communicating. His memory is now starting to be affected, He can no longer read or write, shows no empathy. Any research is so very important as I am living a different life to what we had planned. No nice retirement just years of sad decline which breaks my heart as I am losing my best friend a little bit every day and I don’t know how I can face that future without my bestest friend beside me.

Julie

My darling Sally and I were approaching retirement and making plans for travel and visiting our children, family and friends. Then Sally started forgetting how to do things, forgetting names, forgetting where she lived. After scans and consultations we were told Sally has Alzheimers. Just five years have passed. Sally can do nothing for herself. She cannot see properly, cannot speak properly, does not know anyone. All we can do is make Sally's life as happy for her in her own world as we possibly can. We are heartbroken.

Andrew

I was a psycho-geriatric nurse. My mother developed vascular dementia and entered a nursing home when my dad, her main carer died. Lost her in 2012.
Now both my husband and my sister's husband are in the early stages of vascular dementia ( mine) and Alzheimers ( sister's.
It was my husband who wanted to make a donation and be proud to wear his forget- me- not badge.

Jude

A woman sat in a chair
My big sister Gwen had dementia and passed away 2 years ago. She worked in retail all of her life and was loved by everyone, a very popular lady in our local community. Always kind and caring, respectful and honest until this terrible illness changed her and eventually took her from us.we miss her so much.

Denise Kenneally

A woman with short blonde hair and white patterned top
My wife began forgetting small things in her mid-forties. I used to think it was me. I took her to various specialists who confirmed Alzheimer's. Mary, my wife, would never speak of those days ever again.
Life slowly became hectic with sundowning, anger, and agitation, where I was up 8 times per night.
I was advised to get some respite, but was against it; finally, and regretfully, I agreed. Not because I didn't need the help, I just felt so guilty, then the staff managed to not be able to explain her broken neck. Devestated, she went from. Home to home until we finally found her forever home.

She is at the end of life now, aged 66. I miss her every day and love her so much. The pain, I am sure you have all felt, is the hardest to bear. I will always love her even though she can't speak. I lose a bit more every time I visit, and it hurts so much. Love for them, and memories, are all we have left.

Frank

A man wearing a light blue shirt sat at a table
My husband was diagnosed in May 2024 with Lewy Body Dementia, he is and always will be my love, my life. I miss him terribly, even though he is in care and I spend everyday with him I lose a bit of him everyday, he recognises me and every morning when he sees me his face lights up with a big smile, I look forward to this smile everyday, even when he sometimes forgets my name he always recognises me, familiarity is important so I will be by his side everyday always.
I will Love you Ratbag Always & Forever 💕

Frances

My Mum 84 and my best friend 63 who was a nurse had dementia and I had so much help and respect from lots of people involved Thanks everyone

Sharon Adams

I lost my dear brother Dennis in March this year.My sister-in-law did so well in caring for him until it became impossible and he had to go into a nursing home.Such a cruel disease and so heartbreaking for the family and close friends

Lilian

My stepmother was an accomplished sportswoman, teacher, author, film-maker, journalist and an extremely loving wife to my father. She developed dementia before he died and with their deep love for one another were just about able to carry on with their busy social lives. When he died we were able to keep her at home with the help of truly wonderful carers, neighbours and friends. All this changed unfortunately when she developed a severe case of UTI. She became very difficult in hospital and was moved to a local care home. She was a very strong personality and was not an unassuming gentle soul sitting in a corner smiling at everyone. She became very aggressive and had to be regularly sedated - all very distressing for everyone involved including her I would imagine. She died (I have to say mercifully) within six months of moving into the home. A very sad ending to a hitherto richly rewarding life. I hope and pray some sort of cure or better understanding of this devastating disease becomes available in the future.

Suzanne

My mother Anne and 2 sisters Frances and Caroline suffered from Alzheimer's. Caroline was carer for our mother, Frances was cared for by her husband and family and I became carer to Caroline for 3 years. When the illness progressed and caring at home became unmanageable sadly the decision was made to move them into care.
They are all sorely missed by our remaining family and friends and remain in our thoughts.

Allison

I looked after my husband Kenneth Morrison for 16 years it was hard at times but I would not have it any other way it is a devastating illness he died march 2.the donation was was collected after his funeral

Joan

Both my parents died of Alzheimers and I currently have two sisters, younger than myself, in care homes suffering from dementia. Sad.

Glyn

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