Dementia Support Line
My mum had early on set dementia about 10yrs before I...
I have a twin sister named Sandra, we are 72 yrs old. She has dementia. Sandra has always had a much stronger character than me so never thought she would get this...
I do not have a Altzimer story but lost my father around fifty two years ago so I know how hard it is to lose someone so if we can help someone either this horrible...
My husband was diagnosed with dementia One year ago,...
Last year I volunteered to sell badges for the appeal because my mom had been diagnosed aged 69.
At first she hid her symptoms. It was covid so we weren't spending...
My Forget Me Not is for my mother, Gail.
As...
My mum got Dementia around 8 years ago, but over time she got worse, 1 minute she knew who me & my sisters were by name then she wouldn't.
My mum was a fighter but...
I’m supporting the Alzheimer’s Society because at...
My Dad was diagnosed with lewy body 2018.
We sadly...
My mom Sandra was diagnosed with mixed dementia 5...
Earlier this year mum passed peacefully away suffering with vascular Dementia,
We were very fortunate that she new who we were her family, in her late nineties
&...
Diagnosed 4 years ago.now 71 and a half.Disease slowly manifesting itself as short term memory affected spelling not good or vocabulary now.Belong to local dementia...
My mum had early on set dementia about 10yrs before I lost her 2 yrs ago when I really needed her so much I got a brain tumour she was my best friend, I’m recovering ❤️🩹 from ambiguous grief which is grieving when my mum is still alive therapy has helped me immensely I’m strong and will fund for the most cruel disease 🦠 love you mum 💔❤️🩹💔💐
Tracy Allsopp
I have a twin sister named Sandra, we are 72 yrs old. She has dementia. Sandra has always had a much stronger character than me so never thought she would get this awful disease. She now has to have care 24hrs. Thankfully she has such a loving family so she is able to stay at home with all of them looking after her.
Sue
I do not have a Altzimer story but lost my father around fifty two years ago so I know how hard it is to lose someone so if we can help someone either this horrible infliction I would be delighted kept the hood work going please .
Mary
My husband was diagnosed with dementia One year ago, he can do most things but needs help remembering how to do them, unfortunately he is a very independent man who thinks he can do things without me prompting or reminding him how to do things so sometimes I get frustrated, but we work through the situation. I would say to anyone let someone with dementia do as much as they can SAFELY
Jill
Last year I volunteered to sell badges for the appeal because my mom had been diagnosed aged 69.
At first she hid her symptoms. It was covid so we weren't spending as much time together and nobody was going out so it didn't seem strange.
She struggled finding the right words and her handwriting and spelling became worst. She started stockpiling food and she struggled to cook simple meals. Then gradually she began to lose things frequently, put things in odd places, lock herself out and struggle with counting money.
When her driving started to be affected the GP did a test and referred her for a full memory test. The appointment was nearly a year away. In that time I changed jobs to spend more time with her. She couldn't shop on her own so we would take her. She'd eat ready meals. We had to get carers to get her up and dressed each day. She stopped being able to manage toileting. She was diagnosed with mixed dementia.
After a serious fall we decided care was the best option. Id had to take a month off work with stress as I was running two households, caring and trying to work full time. Mom would cry when you mentioned a care home so after being in a community ward for a few weeks I told her she was going somewhere quieter to continue recovering. She has now been there a year.
I see her often but naturally she'd be confused about who people were. One time she asked me not to call her mom so I stopped. I'd introduce myself everytime I saw her. She'd seem to recognise me and she knew we'd go get sweet food and walk around. I'd put her headphones on and blast her fave tunes and she'd manage to sing the odd word.
Two weeks ago she stopped recognising me at all. She backed away when I went to wipe her face. Even having lost all her skills and words I'd still held onto her enthusiasm when she saw me, but now it feels like she has completely slipped away. Her swallowing is getting worst so I know she hasn't much more time with her other health conditions.
It is like watching someone regress to being a toddler. My mom was stubborn and independent but I became her carer, managed her health and finances and I was totally unprepared.
I found the A.S website and social media a great support. Hearing real life stories and getting answers to what to expect. I didnt feel entirely alone.
I miss my mom even though she is still here and ill wear my forget me not for my mom.
At first she hid her symptoms. It was covid so we weren't spending as much time together and nobody was going out so it didn't seem strange.
She struggled finding the right words and her handwriting and spelling became worst. She started stockpiling food and she struggled to cook simple meals. Then gradually she began to lose things frequently, put things in odd places, lock herself out and struggle with counting money.
When her driving started to be affected the GP did a test and referred her for a full memory test. The appointment was nearly a year away. In that time I changed jobs to spend more time with her. She couldn't shop on her own so we would take her. She'd eat ready meals. We had to get carers to get her up and dressed each day. She stopped being able to manage toileting. She was diagnosed with mixed dementia.
After a serious fall we decided care was the best option. Id had to take a month off work with stress as I was running two households, caring and trying to work full time. Mom would cry when you mentioned a care home so after being in a community ward for a few weeks I told her she was going somewhere quieter to continue recovering. She has now been there a year.
I see her often but naturally she'd be confused about who people were. One time she asked me not to call her mom so I stopped. I'd introduce myself everytime I saw her. She'd seem to recognise me and she knew we'd go get sweet food and walk around. I'd put her headphones on and blast her fave tunes and she'd manage to sing the odd word.
Two weeks ago she stopped recognising me at all. She backed away when I went to wipe her face. Even having lost all her skills and words I'd still held onto her enthusiasm when she saw me, but now it feels like she has completely slipped away. Her swallowing is getting worst so I know she hasn't much more time with her other health conditions.
It is like watching someone regress to being a toddler. My mom was stubborn and independent but I became her carer, managed her health and finances and I was totally unprepared.
I found the A.S website and social media a great support. Hearing real life stories and getting answers to what to expect. I didnt feel entirely alone.
I miss my mom even though she is still here and ill wear my forget me not for my mom.
Gwen
My Forget Me Not is for my mother, Gail.
As Dementia slowly erased her memories, my father faced a question no wedding vow prepares us for: How do you continue loving someone when you become the only one left holding the story of your life together?
For six years, he answered that question one day at a time.
After his death, I opened the journals he left behind. Inside were the private thoughts of a husband watching the woman he loved disappear in plain sight, while wrestling with exhaustion, heartbreak, faith, and a God who sometimes seemed silent.
What I found was not a story about Dementia.
It was a story about a promise.
A promise so powerful that even when memory failed, love did not.
That story became Get In The Boat. And it changed me forever.
As Dementia slowly erased her memories, my father faced a question no wedding vow prepares us for: How do you continue loving someone when you become the only one left holding the story of your life together?
For six years, he answered that question one day at a time.
After his death, I opened the journals he left behind. Inside were the private thoughts of a husband watching the woman he loved disappear in plain sight, while wrestling with exhaustion, heartbreak, faith, and a God who sometimes seemed silent.
What I found was not a story about Dementia.
It was a story about a promise.
A promise so powerful that even when memory failed, love did not.
That story became Get In The Boat. And it changed me forever.
Darlene
My mum got Dementia around 8 years ago, but over time she got worse, 1 minute she knew who me & my sisters were by name then she wouldn't.
My mum was a fighter but myself & my sisters cared for our mum day in day out, sadly my mum passed away on 05/04/2026 at 92 years old, miss her so much x
My mum was a fighter but myself & my sisters cared for our mum day in day out, sadly my mum passed away on 05/04/2026 at 92 years old, miss her so much x
Paula my
I’m supporting the Alzheimer’s Society because at the age of 36 I lost my mother to a combination of dementia and physical deterioration. I had been her main carer from the age of 21 when she was diagnosed to her death 15 years later. At the age of 44 I started with memory loss it took till I was 50 to be diagnosed with mixer dementia Alzheimer’s and vascular dementia. So really I’m supporting for both my late mother and myself. Life is cruel but with the Alzheimer’s society there is a glimmer of hope. There work in support, research and influencing is invaluable that’s why I will continue to fundraiser and work as a dementia voice partner for as long as I can.
Love and hope Anita
Love and hope Anita
Anita
My Dad was diagnosed with lewy body 2018.
We sadly lost him 2 September 2025. He had been ill for a number of months but never forgot us. He was a larger than life and everyone that knew him would never forget him. The family have a large hole in there life.
Angela
We sadly lost him 2 September 2025. He had been ill for a number of months but never forgot us. He was a larger than life and everyone that knew him would never forget him. The family have a large hole in there life.
Angela
Angela
My mom Sandra was diagnosed with mixed dementia 5 years ago. On Wednesday the 10th of June 2026 at 22:44, mom was set free and is now no longer locked inside her mind by this terrible disease. Mom was 79, she dedicated her life to me and my son, they adored and idolised each other in equal measures She battled through every challenge and never gave in. I am so proud to be her daughter and I am content knowing she is now at peace. Love you always mom x
Katrina
Earlier this year mum passed peacefully away suffering with vascular Dementia,
We were very fortunate that she new who we were her family, in her late nineties
& cared for in her home. Eating became very difficult & the result of not being able to have solid food at all & then also difficulty with fluids coordination between brain & throat, it was not nice seeing her body loosing flesh. At the time of caring all was done to keep her comfortable clean & looked after with dignity.
I wore my Forget me not at Mums Funeral with Pride , some asking what it was others new. Remember as carer for a loved one you are not on your own, it is not easy, it is now that she’s gone that you look back & the full impact of it hits.
We must support research.
We were very fortunate that she new who we were her family, in her late nineties
& cared for in her home. Eating became very difficult & the result of not being able to have solid food at all & then also difficulty with fluids coordination between brain & throat, it was not nice seeing her body loosing flesh. At the time of caring all was done to keep her comfortable clean & looked after with dignity.
I wore my Forget me not at Mums Funeral with Pride , some asking what it was others new. Remember as carer for a loved one you are not on your own, it is not easy, it is now that she’s gone that you look back & the full impact of it hits.
We must support research.
Chris
Diagnosed 4 years ago.now 71 and a half.Disease slowly manifesting itself as short term memory affected spelling not good or vocabulary now.Belong to local dementia club helps hearing other peoples storiesum died of it watching her deteriate very sad.Wife very supportive.I am positive but at same time anxious of the future.
Roderick
Share your story
However you’ve been affected by dementia, this is a place for you to share your Forget Me Not story with other people who get it.