Heather Hooper's experience of being part of the Volunteer Advisory Panel

Heather tells us about her experience as a dementia volunteer

Hello, My name is Heather Hooper, I have been a volunteer with the Alzheimer's Society for 10 years as a Dementia Friends ambassador raising awareness through a variety of ways, campaigning, fundraising and presenting Dementia Friends information sessions.

I have lived experience of dementia through caring for my mum on her dementia journey. I am passionate about dementia and determined to make a difference. 

In addition, I support the Dementia Resource Centre in Peterborough with requests such as attending cheque presentations and more, and am the independent Chair of the Peterborough and Cambridgeshire dementia panel which helps to shape a more inclusive and effective support pathway for people with dementia and their carers, within the region.

How long have you been a member of the Volunteer Advisory Panel?

Three years - which is a full term! I joined in 2023 and my term ends in January 2026.

The first year was about learning how the VAP operated within Alzheimer's Society and taking initial steps to join projects that interested me. 

In my second and third years, with more confidence, I took up projects which I was most interested in contributing to, including reviewing the Volunteer Guide (which includes everything our volunteers need to know when they start at Alzheimer's Society), reviewing content for and presenting e-learning modules, and representing the VAP on award or recruitment panels.

The panel is made up of volunteers supporting different areas of Alzheimer's Society and includes members with lived experience. 

It has been a privilege to work alongside everyone, particularly those who have dementia, who are able to give us an insight on how dementia has impacted on them and the type of services and support the Society needs to ensure is available. All voices are heard.

What made you want to join VAP?

My Volunteer Manager encouraged me to apply for the role as I wanted to have a say in helping to shape and improve the experience of volunteers. My Volunteer Manager thought that I would be able to make a difference as I enjoy having input into decisions  and I'm not shy at coming forward! 

I trusted my role manager's judgement and applied and the rest is history! I haven't looked back.

It has been a fascinating journey into the inner core of the Society, working alongside like-minded people and more importantly, I know that in my term I have made a difference to the volunteer experience within the Society. My term has now come to an end - I've thoroughly enjoyed my time in the role. 

What would you say to someone who is considering joining the panel

As a member of VAP you're in a privileged position to get insight that you may not already have in order to contribute to decision making. I've enjoyed how my contribution has helped people. I'm confident they are supported effectively by the Society.

As a member of the VAP you are given opportunities to work alongside senior managers when they propose changes or introduce new policies and procedures. You can be involved with as many projects as you feel comfortable with, and you can follow your interests or where you want to make most difference.

You'll get support from the Culture and Engagement team throughout your term, and will get support and a “buddy” to help ease you into the role. 

Staff will respect and listen to your contributions giving you feedback in return. I've found the work very rewarding and encourage anyone who is interested to apply!