Evidencing the impact of dementia

Alzheimer's Society gathers and generates evidence on the scale and impact of dementia across the UK. We produce reports to deepen understanding of dementia and to be used by inform solutions.

On this page you'll find:

  • An introduction to our strategic evidence experts
  • Our reports
  • All-Party Parliamentary Group on Dementia Reports
  • Our consultations and evidence submissions
  • Parliamentary briefings between 2020 and 2025

Strategic evidence

The Strategic Evidence team are our in-house experts for dementia data, economics, care and clinical research evidence. Our aim is to curate a robust, relevant and useable strategic evidence base to deepen understanding of dementia and inform solutions that will drive change for people living with dementia now, and in the future.  

More information coming soon.

Latest reports

Lived experience survey results 2025

This lived experience report, commissioned by Strategic Evidence at Alzheimer’s Society and delivered by Walnut Unlimited, explores the insights and experiences shared with us by people affected by dementia through our 2025 lived experience survey. The survey aims to explore the experiences of people affected by dementia across England, Wales and Northern Ireland, including highlighting where inequalities in experience exist and comparisons to our 2024 survey. 

Read the full report

All-Party Parliamentary Group on Dementia Reports

The All-Party Parliamentary Group (APPG) on Dementia, a group of Members of Parliament and Members of the House of Lords from across the political spectrum, supported by Alzheimer’s Society, regularly produces reports on aspects of dementia experience, care, and research. Check them out here:

Parliamentary briefings

October 

10 October- House of Lords Debate- The state of social care in England, and the case for a comprehensive social care strategy and further support for unpaid carers

7 October- House of Commons Debate- Lord Darzi’s Independent Investigation into NHS Performance

September 

2024 Party Conferences- Briefing for MPs 

3 September- Parliamentary adjournment debate-  Potential merits of a cross-Government strategy on unpaid carers

July

2024 King's Speech - Alzheimer's Society Briefing

May

16 May - Westminster Hall Debate - Inequalities in dementia services

January

18 January - House of Lords Question for Short Debate - Plans to create parity of health and social care to address dementia

11 January -  Westminster Hall Debate - New treatments for dementia

November

The King's Speech- Briefing for debates on Science and Research

The King's Speech- Briefing for debates on Health and Social Care 

October

16 October- Lords Debate- The report from the Adult Social Care Committee: 'A “gloriously ordinary life’’: spotlight on adult social care'

Party Conference Briefing- Make Dementia a Priority

September

18 September- Lords Question- Funding for the Major Conditions Strategy

4 September - Lords Question - Dementia Diagnosis

June

12 June - Lords Question - Huntingdon's Disease

May

23 May - Parliamentary Debate - Northern Ireland Budget

November

24 November - Backbench Business Debate - Value of Social Care

September

8 September - Lords Oral Question - Horizon Europe and Dementia Research
 

May

17 May - Queen's Speech - Lords Debate on Education, Welfare, Health and Public Services


16 May - Queen's Speech - Commons Debate on making Britain the best place to grow up and grow old
 

April

25 April - Health and Care Bill - Commons Consideration of further Lords Amendments - Cap on Care Costs
 

March

30 March - Health and Care Bill - Commons Consideration of Lords Amendments - Cap on Care Costs
 

28 March - Adjournment Debate on ‘lateral flow tests in health care settings
 

10 March - Lords Oral Questions Session - Care Home Evictions following Complaints
 

10 March - General Debate - Deterioration for people with long-term conditions during the pandemic: joint briefing with twenty other charities and specific briefing on dementia
 

7 March - Health and Care Bill Lords Report Stage - Cap on Care Costs/Clause 155

 

1 March - Health and Care Bill Lords Report Stage - Dementia Amendment

 

February 

10 February - General Debate - Dementia research in the UK

 

2 February - Oral Statement - Levelling Up White Paper Briefing


January

26 January - Health and Care Bill Lords Committee Stage Briefing - Cap on Care Costs


6 January - Lords Oral Question - Hospital beds and social care

November

30 November - Adjournment Debate - Patient access to NICE approved products

 

23 November - Lords Debate - Increasing the use of art or music-based interventions in people affected by dementia

 

22 November - Commons Debate - New Clause 49 on Cap on Care Costs for Charging Purposes 

 

8 November - Adjournment Debate - UK Vaccine Strategy

 

October

27 October - House of Lords Oral Question - Health and Social Care Levy and Provision of Social Care

 

September

21 September - Increasing access to a diagnosis: Regional variation

 

21 September - Increasing access to a diagnosis: Ethnic minorities

 

21 September - Increasing access to a diagnosis: Hospitals and care homes

 

8 September - Commons Debate - Ways and Means resolution on the health and social care levy

 

8 September- Report Briefing - APPG on Dementia Report - Fuelling the Moonshot: Unleashing the UK’s potential through dementia research 

 

7 September - Health and Social Care Bill - Committee Stage Briefing

 

2 September - Stabilise, Energise, Realise: A long term plan for social care - Report Briefing

 

July

22 July – Westminster Hall Debate – Support for Unpaid Carers and Carers Week
 

14 July - Commons Debate - Health and Care Bill Second Reading


5 July – House of Lords Oral Question – Memory Assessment Services Waiting Times


June

24 June - Lords Debate - Social Care Provision in the UK and the Role of Carers 


23 June - Moving Forward Stronger Paper – Launch Event Briefing


May

27 May – General Debate - Dementia Action Week
 

19 May – Queen’s Speech Debate – A Plan for the NHS and Social Care
 

17 May – Dementia Action Week – MP Briefing

 

April

22 April - Westminster Hall Debate - Social care and the Covid-19 outbreak
 

19 April - Public Accounts Committee - Adult social care markets inquiry
 

15 April - Westminster Hall Debate - Research and Development spending 

 

March

18 March - Westminster Hall Debate - Social care reform and workforce
 

16 March - Westminster Hall Debate - The future of research and development funding
 

11 March - Adjournment Debate - Concussion in sport
 

February

9 February - House of Lords Oral Question - Impact of pandemic and restrictions on over 75s


January

13 January – Science and Technology Committee - UK Science, Research and Technology Capability and Influence In Global Disease Outbreaks Inquiry – Evidence session 


12 January – General Debate on Covid-19 


12 January – Joint Committee on Human Rights - The Government's response to covid-19: human rights implications of long lockdown


11 January – Public Accounts Committee – Covid-19: Planning for a vaccine part 1 inquiry - Evidence session 


6 January – Covid-19 Statement: Care home visits & vaccinations 


6 January – Health and Social Care Committee – Evidence session with Secretary of State 

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The Strategic Evidence team works to gather and review different types of existing dementia evidence. This includes evidence from academic research, dementia data, lived experiences, and health economics. If there are gaps in the existing evidence, we identify them and consider commissioning research with external partners to address them.  

The term 'academic research' relates to any research or evidence we collect from researchers. These researchers are usually affiliated with academic institutions such as universities or research hubs affiliated with universities. Health economics evidence generally focusses on efficiency, effectiveness, value for money and benefits associated with health or health care.

Evidence we gather and generate is produced into reports and other materials, such as our Because We’re Human Too report, demonstrating what we know about dementia. These reports make up what we call our strategic evidence base. Our strategic evidence base is continually evolving.  

We also look out for new and emerging trends and evidence which will improve our understanding of dementia.

Our reports are widely shared so that our strategic evidence can be used to inform the response and solutions not only of Alzheimer Society, but of the wider system – driving change for people living with dementia now, and in the future.