Knitters needed to unite against dementia and make Dementia Cannula Sleeves

Handmade for Dementia aims to reduce the number of people with dementia requiring recannulation. Are you a knitter? You could make Dementia Cannula Sleeves.

People with dementia often find fiddling with material a helpful way to relieve feelings of anxiety. ‘Twiddling’ can be incorporated into specially-made activity blankets, cushions, aprons, toys, muffs and mitts.

We speak with Sharon Holdstock who founded Handmade for Dementia. Through this initiative, the group is helping to reduce the anxiety of people affected by dementia in hospital with the use of their newly devised Dementia Cannula Sleeves.

Now, Sharon seeks more volunteers to join her national campaign to help knit Dementia Cannula Sleeves for local hospitals.

Handmade for Dementia group

Sharon, pictured third from the left, with NHS staff and friends proudly modelling Dementia Cannula Sleeves.

How I became interested in knitting for people with dementia

Two years ago, I was a day care volunteer at a hospice in Chester. It was there that another volunteer introduced me to a knitting pattern from the NHS.

I’m not a knitter, however the pattern from the NHS for Dementia Twiddle Mitts was so easy to make. I knitted a couple of them within a few days. Soon I realised these twiddle mitts, lap mats, boards and comfort dolls are really needed.

Dementia is prevalent in my family, and I wanted to see how many others could benefit from these items. I decided I would try and find people to help make them.

Creating a community of knitters

Initially, there were only about fifteen members knitting within Chester. They started to make twiddle mitts for all the care homes in their local area. They also made fidget lap mats, fidget aprons and new outfits for dolls to be given as comfort dolls to people affected by dementia.

Back in May 2016, I’d started a Facebook group dedicated to Handmade for Dementia. It is helpful for members who want to swap ideas, share new techniques, stay updated on the progress of donations and read the feedback we receive from hospitals.

We provide guidelines on how to make things safely for all of our members, including our out-of-area members via Facebook.

All items made in the Handmade for Dementia group are risk assessed (and labelled, if local to Chester) before being donated to the hospitals.

Our local knitting group in Chester meets every week and provides great social interaction for members who do not have a lot of company.

Seeking a new challenge

Once the demand for twiddle mitts slowed down, the group were trying to think of new items they could make.

In October 2017, it was knitter Eileen Copeland, a retired District Nurse, who suggested a knitted cannula sleeve. This would help ease the anxiety of an obtrusive cannula needle being inserted in the arm.

The cannula needle can also be costly, so the need for fewer to be used is something we wanted to help with.

A collection of 50 knitted cannula sleeves

50 Dementia Cannula Sleeves for the Betsi Cadwaladr University Health Board Wrexham Maelor A&E.

Our new national campaign: Dementia Cannula Sleeves

The Dementia Cannula Sleeve is a longer twiddle mitt with cuffs at each end that can be worn on any arm.

The sleeves are made from really bright colours and textured wool. They are also lined with an inner sleeve for added comfort.

Patients are less likely to pull out their cannula needle while twiddling with the items sewn on it. These items are only ever crocheted or knitted, and therefore are very safe.

By reducing the need to re-cannulate people affected by dementia, it saves money, time and the need for sedation in some cases.

What can be achieved with the sleeve

The Dementia Cannula Sleeves were trialled for two months at a Chester hospital towards the end of 2017. They were hailed a great success.

Our Facebook group has now grown to include over 3,000 members. There are students who find knitting a helpful way to relieve the stress of exams. We also have members who are bereaved, and other members that have joined the group who are in remission from cancer. They all say making our Dementia Cannula Sleeves is helping them, by helping others.

So far, Handmade for Dementia has made over 3,500 Dementia Cannula Sleeves and donated them to 55 hospitals in the UK since January 2018. We now own the copyright to the pattern that has saved the NHS thousands of pounds.

Not only that, this year Handmade for Dementia was nominated for a Dementia Friendly Award. It has recently been announced that we are a finalist for Trailbrazer of the year award.

Get involved

Support Handmade for Dementia

The group is looking for knitters who would like to help the campaign. Join them on Facebook and volunteer to knit these Dementia Cannula Sleeves for your local hospitals.

Facebook group Follow on Twitter

Please note, Handmade for Dementia can only support volunteers who wish to make the Dementia Cannula Sleeves via the group for hospitals of your choice. They are focused on this national campaign and are unable support volunteers hoping to make other twiddle items, such as mitts, aprons or boards.

 • Learn more about various restless behaviours - such as fidgeting, pacing and agitation – that people with dementia may develop.

33 comments

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This really very good to see that cannula sleeves made by your team are liked by lots of care home in the UK this is very great and interesting. By doing so you helped thousands of people selflessly.

Hello there.

Thank you, however, the dementia cannula sleeves are only used in hospitals not care homes.

Hello there,
Thank you for your comment. The Dementia Cannula Sleeves are only used in hospitals.
Please feel free to join the Handmade for Dementia Facebook group to make the Dementia Cannula Sleeves for your local hospitals https://www.facebook.com/groups/HandmadeForDementia/

Great idea, but why just Facebook? Lots of people don’t use Facebook or have closed their accounts on it but would still like to volunteer as a knitter. Are there no off-line methods of volunteering to knit?

Perhaps you can start an off line group in your local area? Put up notices in your local shops & newsagents & local library? Talk to your local alzheimers society for advice? And local care homes to discuss needs? Your local WI group?

HI
We have an excellent reputation with the hospitals and they know and expect every DCS to be risk assessed before delivery. Every DCS has to be seen by our group admins for this to happen.
The copy written pattern is only available via Handmade for Dementia.
Thank you

For patient safety we have to risk assess every dementia cannula sleeve and we do this via photographs and questions oiated on to group pages.
There are thousands of unsafe Twiddle mitts out there and lots of hospitals will not take those for that reason. We do not want our DCS getting the same name.

Hello there,
We risk assess every Dementia Cannula sleeve via photographs and a series of questions. Impossible to do any other way, sadly.

I would love to knit for you can I have pattern and I will get started.

Please click on the Facebook Group link in the article.
It will take you to fb page if you are on social media.

Please join the Handmade for Dementia Facebook group to make the Dementia Cannula Sleeves for your local hospitals https://www.facebook.com/groups/HandmadeForDementia/

I would be interested in helping with some kind of knitting but do not have any dealings with social media. If I can become involved by receiving info by email, I would be interested to know more. I can identify very well with the cannula problem from experience with my late mother and attempts to treat her by drips at the end of her life.

Hi
Sadly I would not be able to reply to and risk asses every DCS of thousands who are not on social media, hence the group and admins to help me.

Regards

Sharon

Hi Sharon I would like to knit the cannula sleeves have you got a pattern please love

Please join the Handmade for Dementia Facebook group to make the Dementia Cannula Sleeves for your local hospitals https://www.facebook.com/groups/HandmadeForDementia/

Please can I have the pattern for these sleeves?

Please join the Handmade for Dementia Facebook group to make the Dementia Cannula Sleeves for your local hospitals https://www.facebook.com/groups/HandmadeForDementia/

Please can I have a pattern?

I would love to help, please could I have the pattern and details of where to send them to? Thank you

Hi I would love to help by knitting some sleeves. Could you send me the pattern and where to send the finished sleeves please.

Please can I have a pattern and where to send or take them when finished.
I would love to help.

Where can I get the basic patter?

I am the manager of a community centre in Warrington, we have a knot and natter group which makes items for various charitable causes. We also run a very popular 'Forget-me-not café every Tuesday morning for people with dementia. We would love to be involved in this venture. Please send me a pattern and let me know how we get finished sleeves to you

Please join the Handmade for Dementia Facebook group to make the Dementia Cannula Sleeves for your local hospitals https://www.facebook.com/groups/HandmadeForDementia/

Pattern please

Please join the Handmade for Dementia Facebook group to make the Dementia Cannula Sleeves for your local hospitals https://www.facebook.com/groups/HandmadeForDementia/

Please tell me where to find a pattern for these twiddle sleevesor details of where I might find one? I have mild cognitive impairment and would value contributing something which can help those fully diagnosed with Alzheimers.

Please join the Handmade for Dementia Facebook group to make the Dementia Cannula Sleeves for your local hospitals https://www.facebook.com/groups/HandmadeForDementia/

I am a manager of a retirement housing court and I am sure that we could make some of these as an activity. How do I get hold of the pattern. We would send them to our local hospital. I am unable to subscribe through work to FB. I do not have an account.

Please send me the pattern. A group of friends and I have made many of the twiddle muffs for several years. This pattern will be great for us.
Thank You.

Hi Pamela, unfortunately the pattern is only available through Facebook at the moment. If you have an account please join the Handmade for Dementia group to make the Dementia Cannula Sleeves: https://www.facebook.com/groups/HandmadeForDementia/

where can i find the pattern, for the knitted or crochet cannula sleeves

Sorry but I will never join Facebook, what a shame Like many others I would love to help, my Mom had Dementia and now I am the main carer for my Brother who was diagnosed in June last year.

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