Jag and her mum, who has dementia, live 200 miles apart. Like so many others, Jag has been exhausted trying to find appropriate care and is worried that she soon won't be able to afford the costs.
This December, the UK goes to the polls to vote for the next Government. The outcome of this General Election could have big implications for people like Jag and the the future of dementia care.
It's stories like Jag’s that demonstrate why dementia needs to be on the agenda of every political party and, most importantly, at the heart of the next Government’s plans.
‘I coordinate my mum’s care from my home in Manchester – 200 miles from her home in Maidenhead.
‘Mum needs around the clock care, and it costs more to arrange Punjabi-speaking carers. It’s difficult to find carers too.'
‘For three months I was driving 400 miles every week to mum’s house and back. It all became too much and I ended up seriously ill, because of the stress of it all and the demands on my time.'
Jag ended up leaving her job because coordinating her mum’s care was taking up so much time. She was constantly having to search for carers, speak to the council, and try and get different health professionals to speak to each other.
'With no income coming in and my savings having been depleted, I am no longer in a position to top up mum’s care.'
‘I promised mum years ago that I wouldn’t move her into a care home, and I’m doing everything I can to keep that promise.'
‘She knows every nook and cranny of her home and just wouldn’t be happy anywhere else.
‘It’s been utterly exhausting, but you keep at it out of love, don’t you? I just want to make sure mum has the best life she can in the time she has.’
Demanding action on dementia – our manifesto for the General Election
Jag’s experience is much too common. People with dementia and their carers don’t get the care and support they should. That’s unacceptable and unfair.
This Election, we need commitments to end this injustice. People with dementia should have the same support as people with other diseases.
We’ve published a manifesto, Demanding Action on Dementia, that outlines commitments all parties should make during this election period. All the recommendations should be delivered by a National Strategy under the name of the Prime Minister.
As a nation, we can be a global leader in creating a dementia-friendly society – by demanding better care and support, by changing social attitudes and by investing more in dementia research.
Together, we can fix dementia care.
Demand action on Dementia
Find out more about our manifesto and how you can help us make dementia a key issue during this election.