The progression and stages of dementia – useful resources

Other useful organisations and resources that can help people with the progression and stages of dementia.

The progression and stages of dementia
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Useful organisations

Carers UK

Telephone
0808 808 7777 (helpline, 9am–6pm Monday–Friday)

Email
[email protected]

Website
www.carersuk.org
www.carersuk.org/forum (online discussion forum)

Carers UK gives carers advice, information and support.

The Lewy Body Society

Telephone
01942 914000

Email
[email protected]

Website
www.lewybody.org

The Lewy Body Society raises awareness of DLB among the general public, medical professionals and decision maker. It also provides information resources for people with DLB and carers.

Rare Dementia Support

Telephone
07388 220355 or 07341 776317

Email
[email protected]

Website
www.raredementiasupport.org

Rare Dementia Support works to support people affected by five rare dementia conditions: familial alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA) and primary progressive aphasia (PPA).

Stroke Association

Telephone
0303 3033 100 (Stroke Helpline, 9am–5pm Monday, Thursday and Friday, 8am–6pm Tuesday and Wednesday, 10am–1pm Saturday)

Email
[email protected]

Website
www.stroke.org.uk

Stroke Association is the UK’s leading stroke charity. They provide information and practical support to people concerned about or affected by stroke.

Review details

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.

Reviewed by: Prof Rob Howard, Professor of Old Age Psychiatry, Faculty of Brain Sciences, University College London 

This factsheet has also been reviewed by people affected by dementia.

To give feedback on this factsheet, or for a list of sources, please contact [email protected]

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