Patient and public involvement

People affected by dementia can make a unique and valuable contribution in every stage of research, helping to ensure we fund the highest quality, relevant research on dementia. 'Nothing about us, without us.'

Volunteers changing research for the better

Alzheimer’s Society has championed the active involvement of people affected by dementia in research for nearly two decades through our Research Network volunteers. 

‘Researchers are have a particular point of view, a scientific point of view but we are coming from a personal level to something that is very close to us'

- Kieran, volunteer

Join our Research Network to support and improve research for all those living with dementia today and in the future.  The network is for people with dementia, carers and former carers. No scientific knowledge or research experience is required.

Become a Research Network volunteer

Anyone personally affected by dementia can get involved. Find out more about our Research Network.

Join our Research Network

If you are a dementia researcher, email our team to discuss working with our PPI volunteers who have an invaluable knowledge and direct experience of dementia. Learn about research proposal development support from our Research Network.

Seeing the impact

We have always been aware that researchers and volunteers value and enjoy collaborating together to drive forward dementia research. We have now gathered evidence to demonstrate the impact patient and public involvement (PPI) has had in recent years. 

Find out more from our short video

Learn more about the impact of PPI from the full report

Information

Patient and public involvement (PPI) is the philosophy that research is carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.

Research
Alzheimer's Society has pioneered the involvement of people affected by dementia in research since it set up the Research Network in 1999.
Research

Our Research Network are people with experience of dementia who play an active role in our research programme. Hear the stories of some of our Research Network volunteers.

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