The Dementia Statements and rights-based approaches

The Dementia Statements reflect the things people with dementia have said are essential to their quality of life. Find out how they apply to measuring and designing services for people with dementia.

  1. You are here: The Dementia Statements and rights-based approaches
  2. The Dementia Statements, the law and the NHS
  3. Using the Dementia Statements to Measure Experience

Outcomes-based commissioning rewards both value for money and delivery of better outcomes that are important to patients.

Outcome areas that matter to people with dementia, and carers, are set out in the Dementia Statements.

The Dementia Statements

  • We have the right to be recognised as who we are, to make choices about our lives including taking risks, and to contribute to society.  Our diagnosis should not define us, nor should we be ashamed of it.
  • We have the right to continue with day to day and family life, without discrimination or unfair cost, to be accepted and included in our communities and not live in isolation or loneliness.
  • We have the right to an early and accurate diagnosis, and to receive evidence-based, appropriate, compassionate and properly funded care and treatment, from trained people who understand us and how dementia affects us. This must meet our needs, wherever we live.
  • We have the right to be respected, and recognised as partners in care, provided with education, support, services, and training which enables us to plan and make decisions about the future.
  • We have the right to know about and decide if we want to be involved in research that looks at cause, cure and care for dementia and be supported to take part.

Companion paper to the Dementia Statements

Easy Read version of the Dementia Statements from MacIntyre

(Find out more about how MacIntyre co-produced the Easy Read version of the Dementia Statements.)

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