The progression, signs and stages of dementia – useful organisations

Here are other useful organisations and resources that can help people with the progression and stages of dementia.

The progression and stages of dementia
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Useful organisations

Carers UK
0808 808 7777 (helpline, 9am–6pm Monday–Friday)
[email protected]
Carers UK gives carers advice, information and support.

The Lewy Body Society
01942 914000
[email protected]
The Lewy Body Society raises awareness of DLB among the general public, medical professionals and decision maker. It also provides information resources for people with DLB and carers.

Rare Dementia Support
020 3325 0828
[email protected]
Rare Dementia Support works to support people affected by five rare dementia conditions: familial alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA) and primary progressive aphasia (PPA).

Stroke Association
0303 3033 100 (Stroke Helpline, 9am–5pm Monday, Thursday and Friday, 8am–6pm Tuesday and Wednesday, 10am–1pm Saturday)
[email protected]
Stroke Association is the UK’s leading stroke charity. They provide information and practical support to people concerned about or affected by stroke.

Review information

Our information is based on evidence and need, and is regularly updated using quality-controlled processes. It is reviewed by experts in health and social care and people affected by dementia.

Reviewed by: Prof Rob Howard, Professor of Old Age Psychiatry, Faculty of Brain Sciences, University College London 

To give feedback on this information, or for a list of sources, please email our Publications team at [email protected]

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