Real stories

Why dementia support matters - Pete's story

An unexpected dementia diagnosis

At 72, Pete, from Northamptonshire, has enjoyed a varied and rewarding career. He served in the RAF, worked in computing and later joined the police. But in 2018, life took an unexpected turn when he was diagnosed with Alzheimer's disease.

Like many people receiving a dementia diagnosis, Pete and his wife, Pam, were left feeling overwhelmed and unsure where to start.

Looking for support and guidance, Pete contacted Alzheimer's Society's Dementia Support Line.

I was given leaflet after leaflet. We were floundering in this pile of paperwork, not knowing what was worthwhile and what was worthless.

'I ended up calling the Dementia Support Line. Over the next hour, a Dementia Adviser had a conversation with us in a really calm, matter-of-fact way. They told us what was a priority and what could be done later.'

A way forward after a dementia diagnosis

'The Dementia Support Line gave us a plan. It was a huge relief; that adviser gave me what I asked for – not just what they wanted to tell me. I have always wanted to track that Dementia Adviser down and tell them what a huge positive impact that call made.'

For Pete, having someone take the time to listen and help him understand what to do next made all the difference.

Armed with practical advice and a plan going forwards, Pete began connecting with Dementia Advisers in his local community.  

It was lovely. Weekly, face-to-face contact with professionals and other people with a diagnosis was uplifting and empowering.

These regular connections helped Pete feel supported and less alone as he adjusted to life after diagnosis.

Staying connected during lockdown

The Covid-19 pandemic and months of lockdowns cut Pete off from much of his support. He saw first-hand how important services like Companion Calls became in this time when people were isolated at home.

It was awful for me because I couldn’t interact with people. 

'Emotionally, I was up and down. Friends who signed up for calls from the Companionship service tell me it has made a massive difference for them.'

Finding purpose after a dementia diagnosis

Over the years, Pete has found another source of support and purpose through our Involvement Team and Dementia Voice. He has used his skills and experience to help shape services and influence change, which has had a huge positive impact on his wellbeing and confidence.

'It has meant everything to me. I have given speeches. I have given feedback on ideas. I have given advice on rolling out new computer systems, and much, much more.'

'I get so much out of it. Using my old job skills to advise and give a different perspective is glorious. It builds my confidence and self-esteem.' 

Knowing I still have my mojo keeps me learning and able to give more. 

The importance of accessing dementia support

Today, Pete is passionate about making sure other people affected by dementia can access the same support that helped him navigate life after diagnosis.

'A dementia diagnosis is so disempowering. You are told you can’t do this and you mustn’t do that.'

It’s vital that dementia services like the Support Line and Involvement are funded so more people like me can benefit from them.

Making life-changing dementia support possible

Services like the Dementia Support Line and Companion Calls are only possible thanks to the generous support of our donors and partners, including Postcode Lottery. 

As we celebrate ten years of partnership with Postcode Lottery, we're proud to have helped people like Pete find support, guidance and connection, and we hope we can continue making a difference together for many years to come.