Alzheimer's Society

If a person has dementia, it is important that they organise their financial and legal affairs while they are still able to do so. This ensures that in the future, their affairs will be set up in a way that they have chosen. The person may want a friend or family member to help them with this.

Make sure that all important papers are in order and that you know where to find them. These papers might include bank and building society statements, records of mortgage or rent, insurance policies, a will, tax and pension details and bills or guarantees.

Mental Capacity Act 2005

The Mental Capacity Act 2005 made provision for people to choose someone to manage not only their finances and property should they become incapable, but also to make health and welfare decisions on their behalf. They will be able to do this through a lasting power of attorney for personal welfare. LPAs replaced enduring power of attorneys (EPAs) in October 2007, when the Mental Capacity Act came into force, although EPAs made before this time are still valid.

(For more information see Factsheet 460, Mental Capacity Act 2005, and Factsheet 472, Enduring power of attorney and lasting powers of attorney.)

Benefits

It is important to make sure that the person with dementia and their carer are receiving all the benefits to which they are entitled. For full details see Factsheet 413, Benefits, or contact the head office of the Department for Work and Pensions (DWP, previously the Benefits Agency), or your local office (for details, contact the head office or look in the phone book). Alternatively, check with the Benefits Enquiry Line or your local Citizens Advice Bureau or advice agency. (For contact details of these organisations, see 'Useful organisations', at the end of this sheet.)

Using an agent

If a person would like their benefits to be paid through a local post office but would prefer not to collect them in person, they can nominate another person, known as an 'agent', to collect their money on their behalf.

Many people arrange for someone else to collect their benefits occasionally, on an informal basis. They simply fill in the person's name and sign the declaration on the reverse of the relevant benefit order form. However, those wishing to make a regular arrangement should inform their local Department for Work and Pensions so that the person's name can be put in the benefits book as an authorised agent.

An agent can only be appointed by someone who understands what this involves, and is able to manage their own finances, with support from others. However, this arrangement can be very helpful, and is best arranged in the earlier stages of dementia.

Payment arrangements

There are four ways in which you can receive your benefits:

• You can have your benefits paid into your bank or building society account.
• You can have your benefits paid into a basic account at your bank or building society, with additional access at your post office.
• You can access your benefits at your post office with a card and PIN number.
• You can nominate someone else to have a card to access your account.

Appointeeship

The person with dementia may eventually become unable to manage their income from benefits. Someone else may then need to administer this income in the person's best interests, to ensure that all benefits are claimed and essentials paid for. This can be arranged through an 'appointeeship'.

The person who is prepared to act on behalf of the person with dementia should contact their local Department for Work and Pensions office. They should explain that the person with dementia is no longer able to manage their affairs and that they wish to become their appointee. Once they have completed the relevant form, a representative from the Department for Work and Pensions may visit the person with dementia, or ask for medical or other evidence, to confirm that they are no longer able to act on their own behalf. The representative should also check that the prospective appointee is suitable and understands their responsibilities.

Wherever possible, the appointee should be a close relative who either lives with the person with dementia or visits them frequently. In certain circumstances, the appointee might be a friend, neighbour, or caring professional.

The appointee:

• should report any change in the person's circumstances that may affect benefit entitlement
• may sign on behalf of the person with dementia, if they are a non-tax payer, to enable bank and building society interest to be paid without deducting income tax
• can only deal with the person's income from benefits, except for small amounts of savings (about £500), which can be used to meet unforeseen emergencies.

An appointee can resign if they feel that they are no longer able to carry out the task. The Department for Work and Pensions can also revoke the appointeeship if it has evidence that the appointee is not acting in the person's best interests. If someone starts to act on behalf of the person with dementia under a registered enduring power of attorney, or is made a deputy by the Court of Protection, this person usually takes over from the appointee in dealing with benefits. If the deputy and the appointee wanted to work side by side then they would have to agree this with the Court of Protection first.

Banking

There are ways in which banking can make it easier for a person with dementia to manage their money. These include:

• having benefits paid directly into the bank or building society account on a four-weekly basis
• paying regular bills through direct debit or standing order.
   

Joint accounts

Many people have joint bank accounts. A joint account may be a useful way of managing finances in the early stages of dementia. However, most joint bank accounts are set up to operate only when both parties have capacity to run the bank account. If a bank knows that someone is acting as an enduring power of attorney, lasting power of attorney or deputy for someone, they will usually want a separate bank account for the person with dementia rather than a joint account.

In terms of separating finances, when it comes to paying for care it is also advisable to have separate accounts. This is because a local authority ought to be means testing the person who is in receipt of the service (for example, home care or residential care), and no one else.

Trusts

If the person with dementia has financial assets, such as property or savings, they can set up a trust. This ensures that the assets are managed in a way that the person chooses, both now and in the future. There are a number of different kinds of trusts and ways of arranging them.

If a person in the early stages of dementia wants to do this, they should consult a solicitor while they are still able to convey their wishes clearly. It is important that the trust is set up well before the person needs care in a care home. This is because the local authority needs to be sure that the person with dementia has not set up a trust to deliberately deprive themselves of assets that could contribute towards the cost of their care.

Wills

Everyone should make a Will. A Will ensures that when a person dies, their money and possessions go to people of their choosing. People with dementia who wish to make or change their Will should seek legal advice from a solicitor as soon as possible.

People with dementia may still have 'testamentary capacity' − in other words, the legal capacity to make or change a Will. The solicitor will make a decision about this, often after taking medical advice.

People who no longer have testamentary capacity because of their dementia cannot make or change a Will, and no one can do so on their behalf, except for the Court of Protection, which in certain circumstances can make a statutory will. A solicitor can explain this further, and the Court of Protection can send out information on statutory Wills (see details below).

A partner, relative or close friend of the person with dementia may also want to make or change their Will. They may wish to leave some or all of their estate to people other than the person with dementia − for example, their children.
If a person wishes to leave some or all of their estate to a person with dementia, they should consider setting up a trust to ensure that the assets are used in the best interests of the person with dementia. They should also check what effect a bequest will have on any state benefits that the person receives.

Where to go for help

People with dementia and their carers may need help managing their financial and legal affairs. The following sources may be useful, as well as the organisations listed at the end of this factsheet.

Citizens Advice Bureau

The local Citizens Advice Bureau (CAB) is often the best starting point for advice. The service is free, confidential and independent. Trained CAB advisers offer information and advice on a range of issues including benefits, housing, debt and employment. They may be able to help you resolve the problem or they may provide details of other professionals or organisations.

Many CABs have a solicitor able to give free advice, and some also have an accountant, and can often provide information in a range of languages, or refer people to an interpreting service. Local opening times and arrangements vary: some offer appointments, while others offer a drop-in service where people have to walk in and wait their turn. Some CABs have telephone advice sessions too, but lines tend to be very busy. An increasing number of CABs provide an email service, and most accept queries by letter.

For details, see 'Useful organisations' at the end of this factsheet.

Some local neighbourhoods also have advice centres, which provide advice on financial or other problems. To find out what services exist in your area, ask at your library or town hall.

Financial advisers

If you are managing savings or investments, you may need professional financial advice. You can seek advice from an adviser attached to a bank or group of companies, who can advise you on the range of products they provide. Alternatively, you can see an independent adviser who can advise you on a wider range of products.

If you would like to consult an independent financial adviser, ask for a recommendation from someone you trust or contact the Independent Financial Advisers Promotion, which will send you details of four advisers in your area and a voucher offering a free consultation. You may need to talk to several advisers on the phone before making up your mind. Some charge a fee and others a commission and some charge either/or. Check before you make an appointment.

Under the Financial Services Act 1986, all financial advisers must be authorised by a self-regulatory organisation or professional body. If you want to find out whether an adviser is authorised, or if you have any queries or complaints, contact the Financial Services Authority.

(For contact details, see 'Useful organisations' at the end of this factsheet.)

Solicitors

When completing legal documents, it is advisable to seek advice from a solicitor. This ensures that they are completed correctly and are legally valid. Alzheimer's Society can give details of legal firms with specialist experience in legal problems arising in relation to dementia. Check with the solicitor whether you qualify for public funding.

Alternatively, for details of solicitors, advice agencies and information providers committed to providing a high standard of services in your area, contact  Community Legal Advice or the Law Society (see 'Useful organisations', below).

Firms offering both legal and financial advice

Some law firms also employ independent financial advisers, making it easier to combine financial and legal advice. (See LawNet and SIFA/SIFAc, detailed below).

Your local Alzheimer's Society branch will always be willing to talk to you and offer advice and information to support your needs.

For more information, Dementia Catalogue, our specialist dementia information resource, is available on the website at alzheimers.org.uk/dementiacatalogue.

Useful organisations

Age Concern England
Freepost SWB 30375
Ashburton
Devon
TQ13 7ZZ

T 0800 00 99 66 (free helpline every day 8am-7pm)
E use the enquiry form on the website (see below)
W http://www.ace.org.uk/

Provides advice and information for older people in England. Produces factsheets on topics including Finding residential and nursing home accommodation and Local authority charging procedures for care homes. Useful fact sheets include How to make a will and Arrangements for others to look after your finances. Look in the phone book under 'Age Concern' for your nearest local group.

Age Concern Cymru
Ty John Pathy
13-14 Neptune Court
Vanguard Way
Cardiff, CF24 5PJ

T 02920 413 555
E enquiries@accymru.org.uk
http://www.accymru.org.uk/

Provides advice and information for older people in Wales.

Alzheimer's Society
Devon House
58 St Katharine's Way
London E1W 1JX

T 020 7423 3500
E info@alzheimers.org.uk
alzheimers.org.uk

Alzheimer's Society Legal Helpline
T 020 7423 3530 (2.30pm-4.30pm weekdays)

Benefit Enquiry Line (BEL)
Benefit Enquiry Line

Red Rose House
Lancaster Road
Preston
Lancashire
PR1 1HB

T 0800 88 22 00 (free helpline open 8.30am-6.30pm weekdays and 9.00am-1.00pm Saturdays)
   0800 243 544 (textphone)
E BEL-Customer-Services@dwp.gsi.gov.uk
W direct.gov.uk/disability-money

National, free telephone advice and information service on benefits for people with disabilities, their carers and representatives. Note that advisers can send out forms and give advice but they have no access to personal records.

Citizens Advice Bureau (CAB)
Various locations

W http://www.citizensadvice.org.uk/

Your local CAB can provide information and advice in confidence or point you in the right direction. To find your nearest CAB look in the phone book, ask at your local library or look on the citizens advice website (above). Opening times vary.

Community Legal Advice
Various locations

T 0845 345 4345 (9am-6.30pm weekdays)
W http://www.clsdirect.org.uk/

A free and confidential service (previously called Community Legal Service Direct) paid for by legal aid, set up to help people tackle their legal problems. It is funded by the Legal Services Commission, and delivered in partnership with independent advice agencies and solicitors.

Counsel and Care
Twyman House
16 Bonny Street
London
NW1 9PG

T 0845 300 7585 (advice line, weekdays 10am-4pm except Wednesdays 10am-1pm)
E advice@counselandcare.org.uk
W http://www.counselandcare.org.uk/

Provides advice, information and financial support for older people, their families and carers.

Court of Protection
Office of the Public Guardian (OPG)
Archway Tower
2 Junction Road
London N19 5SZ

T 0845 330 2900 (customer services, 9.00am-5.00pm weekdays)
E customerservices@publicguardian.gsi.gov.uk
W http://www.publicguardian.gov.uk/

Department for Work and Pensions
The government website at http://www.dwp.gov.uk/ give details of the various benefits and how to claim them.

For details of your local office, go to www.dwp.gov.uk/localoffice
For details of various helplines, go to www.dwp.gov.uk/contact/contact_atoz.asp

Financial Services Authority
25 The North Colonnade
Canary Wharf
London
E14 5HS

T 0845 606 1234 (helpline, 8am-6pm weekdays)
E Email via the website (see below)
W http://www.fsa.gov.uk/

An independent non-governmental body that that regulates the financial services industry in the UK, with a wide range of rule-making, investigatory and enforcement powers.

Help the Aged (England)
207-221 Pentonville Road
London
N1 9UZ

T 020 7278 1114
   0808 800 6565 (seniorline freephone, weekdays 9am-4pm)
E info@helptheaged.org.uk
W http://www.helptheaged.org.uk/

Help the Aged (Wales)
12 Cathedral Road
Cardiff
CF11 9LJ

T 02920 346 550
E infocymru@helptheaged.org.uk
W http://www.helptheaged.org.uk/

Provides advice by letter or phone on topics affecting older people, such as benefits, community care and home safety.

Independent Financial Advisers Promotion Ltd
17/19 Emery Road
Brislington
Bristol BS4 5PF

T 0800 085 3250
E contact@ifpa.org.uk
W http://www.unbiased.co.uk/

The industry body responsible for promoting independent financial advice in the UK. Enables people to confidentially search for details of independent financial advisers in their local area.

LawNet Ltd
First Floor
93/95 Bedford Street
Royal Leamington Spa
Warwickshire
CV32 5BB

T 01926 886990
E admin@lawnet.co.uk
W http://www.lawnet.co.uk/

A network of independent law firms throughout the UK and Ireland. It can refer people to firms in their area with experience in a wide range of specialist areas - for example, in providing people with dementia and their families on legal and financial matters.

Law Society
113 Chancery Lane
London
WC2A 1PL

T 020 7242 1222 (general enquiries)
   0870 606 2555 (for help finding a solicitor, 9.00-5.00 weekdays)
E contact@lawsociety.org.uk
W http://www.lawsociety.org.uk/

The body representing solicitors in England and Wales. It provides details of law firms and solicitors practising in England and Wales, and useful information about legal specialties and fees, as well as tips about what to ask and what to expect from a solicitor.

SIFA
10 East Street
Epsom
Surrey
KT17 1HH

T 01372 721172
E sifa@sifa.co.uk
W http://www.sifa.co.uk/

Trade association and support group for financial advisers who are partly or wholly owned by solicitors, or accountants who have close links with the professions. It can provide contact details of legal firms that offer financial advice to complement their legal advice.

Welsh Assembly Government
Cathays Park
Cardiff
CF10 3NQ

T 0845 010 3300 (English)
   0845 010 4400 (Welsh
W http://new.wales.gov.uk/

Factsheet 467

Last updated: April 2008
Last reviewed: April 2008
Reviewed by: Sara Wilcox, Legal and Welfare Officer, Alzheimer's Society, and Linda Gabriel, Solicitor, Thackray Williams