Real stories We didn't know anyone with a Frontotemporal dementia diagnosis Helen Cumpstey was diagnosed around 2012 with Frontotemporal dementia (FTD), after years of not knowing. Her husband Ray explains the challenges they faced along her dementia diagnosis journey... Helen Cumpstey was diagnosed around 2012 with Frontotemporal dementia (FTD), after years of not knowing. Her husband Ray explains the challenges they faced along her dementia diagnosis journey... ... 13 May 2024 1comment.
Real stories It took four years to get a diagnosis after being misdiagnosed Jackie was diagnosed with early-onset Alzheimer’s disease in October 2023, at the age of 54. It took four years to get a diagnosis after being misdiagnosed. Jackie was diagnosed with early-onset Alzheimer’s disease in October 2023, at the age of 54. It took four years to get a diagnosis after being misdiagnosed. ... 11 May 2024 0comments.
Real stories Tag: Real stories. Share your diagnosis story This Dementia Action Week, we're asking you to share your dementia diagnosis story with us. Read more
Real stories It’s time for politicians to listen to people affected by dementia Michelle Nelson-Greensmith is attending the Dementia Action Week event in Westminster to share with MPs the importance of a diagnosis. Michelle Nelson-Greensmith is attending the Dementia Action Week event in Westminster to share with MPs the importance of a diagnosis. ... 23 April 2024 0comments.
Real stories I wear my Forget me not Appeal badge for Eric Liz cared for her husband, Eric who was diagnosed with mixed dementia in 2016 until his death in April 2022 at the age of 91. Here she shares their story and why she knows the Forget me not Appeal is vital for the future of dementia research. Liz cared for her husband, Eric who was diagnosed with mixed dementia in 2016 until his death in April 2022 at the age of 91. Here she shares their story and why she knows the Forget me not Appeal is vital for the future of dementia research. ... 15 April 2024 3comments.
Real stories Tag: Real stories. Dementia together podcast We share the stories and voices of people affected by dementia in audio interviews from our magazine. Read more
Real stories Taking on Trek26 for my gramps and everyone affected by dementia Charlie Gibson and his grandad Barry became an international TikTok sensation when Charlie shared videos of gramps enjoying music and football. Charlie tells us about the special relationship they share and why he's participating in Trek26 this year. Charlie Gibson and his grandad Barry became an international TikTok sensation when Charlie shared videos of gramps enjoying music and football. Charlie tells us about the special relationship they share and why he's participating in Trek26 this year. ... 04 April 2024 0comments.
Real stories Talking to others and going to groups helps me to support my husband who has Alzheimer’s disease Daisy Timms shares how speaking openly and keeping in touch with people helps her to support her husband Roy, who has Alzheimer’s disease. Daisy Timms shares how speaking openly and keeping in touch with people helps her to support her husband Roy, who has Alzheimer’s disease. ... 28 March 2024 0comments.
Real stories Drawing on an impressive photographic career after a dementia diagnosis Jason Scott Tilley in Coventry, who has vascular dementia, tells us how he still draws on the skills of his photography career. Jason Scott Tilley in Coventry, who has vascular dementia, tells us how he still draws on the skills of his photography career. ... 28 March 2024 0comments.
Real stories Carers whose partners have dementia need more understanding Cordelia Galgut wants people to stop minimising carers’ experiences, especially when their partner lives in residential care. Cordelia Galgut wants people to stop minimising carers’ experiences, especially when their partner lives in residential care. ... 28 March 2024 2comments.
Real stories A panel of people affected by dementia help to make London dementia friendly A panel of people affected by dementia has been helping to make London more dementia friendly. Panel members and others gathered together earlier this year to look back on their achievements. A panel of people affected by dementia has been helping to make London more dementia friendly. Panel members and others gathered together earlier this year to look back on their achievements. ... 28 March 2024 1comment.
Real stories A 24-hour guitar marathon to raise funds for Alzheimer’s Society Ann MacCarthy in Derbyshire shares what it was like to play in a 24-hour guitar marathon in aid of Alzheimer’s Society. Ann MacCarthy in Derbyshire shares what it was like to play in a 24-hour guitar marathon in aid of Alzheimer’s Society. ... 28 March 2024 0comments.