Turning Up the Volume: unheard voices of people with dementia

1. Society isn’t listening to people with dementia – but we are

Turning up volume infographic 1

Turning Up the Volume: unheard voices of people with dementia is a report containing the findings from Alzheimer’s Society’s largest-ever survey with people with dementia to hear their views and experiences of what daily life is like. 

This ambitious and innovative piece of research, conducted by Ipsos MORI, has people affected by dementia at its heart. Through their words you’ll hear the real story of what it’s like to live with dementia, or be an unpaid carer, in England, Wales and Northern Ireland today. It also highlights what the general public thinks and feels about the condition. 

The report is based on four strands of research: a survey of 966 people with dementia; 32 in-depth interviews with people with dementia including those from different ethnic and social groups; an online survey of 500 unpaid carers; and an online survey of 2,356 adults aged 16-75 in the United Kingdom. 

Sadly, our research findings demonstrate the gap that exists for some people with dementia between what they need to live well, and their day-to-day reality. 

For information on the methodology and sample size of this research please see our data tables