How well are you living with dementia? Your views matter

Published 16 November 2012

Alzheimer's Society is carrying out research into how well people are living with dementia. This is for the Dementia 2013 report, which will be launched next year.

This is for the Dementia 2013 report, which will be launched next year.  Evidence will support work on the Dementia Friendly Communities programme and the Prime Minister’s challenge on dementia

Dementia 2012 found that one in five people with dementia are not living well with dementia at all. The report also highlighted a lack of social inclusion among people with dementia living in the community. Dementia 2012 also launched the Dementia Friendly Communities programme to support the changes the Society calls for in the Dementia 2012 report.

The project

The key feature of a dementia friendly community is that it is inclusive of people with dementia. Providing new evidence on this area is therefore vital. The Dementia 2013 report will focus on the experiences of people with dementia living alone in their own home and the support they need to live well in the community.

What we want to do

Like last year, we have produced a survey which is aimed at people with dementia. We appreciate that some people will need support filling it in (for example from a family carer) or that a carer may fill it in on behalf of the person with dementia, but it is essential that the voices of people with dementia are at the heart of this report.

Could you help us?

Can you help Alzheimer’s Society with any of the following:

  • If you are a person with dementia, you can help us by filling in the survey.
  • If you are a carer, you can help us by supporting a person with dementia to complete the survey
  • If you work with people with dementia, you can help us by distributing surveys to people who you support.

You can complete the survey online or download the survey from the Alzheimer’s Society website. If you prefer, we can send you copies of the survey and pre-paid envelopes. The deadline to return surveys is 30 November.

If you can help us in any of the ways above or require any further information, please contact Laura Cook, Policy Officer.

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