End of life care

10. Support for carers, family and close friends

Most people find it difficult to come to terms with the person with dementia approaching the end of life. Many carers say they are grieving over time while the person is alive and as the dementia progresses. This may be because of the dementia progressing over a long period of time, and the changes that they are seeing in the person.

You should tell health and social care professionals about your own wishes, including the need to say goodbye to the person and whether you want to be with them at the end of their life, if this is possible. Caring for someone at the end of life can be a rewarding experience and a time of great closeness. Carers who have supported the person through dying and death often value this as an important memory.