Studies seeking participants

Below is a list of Alzheimer's Society funded projects that are currently seeking participants.

There are many more studies available on the Join Dementia Research service, which matches people interested taking part in dementia research with suitable studies. To find out more, visit our webpage on Join Dementia Research, or go to www.joindementiaresearch.nihr.ac.uk. Alternatively you can call our helpline on 0300 222 11 22 and you will be able to arrange an appointment with our trained advisors will take you through the sign up process.

Clinical trials

Evaluating liraglutide in Alzheimer's disease

This trial is finding out whether the diabetes drug Liraglutide could have benefits for people in early-stage Alzheimer's disease. The trial is looking for people in the early stages of Alzheimer's disease, and who don't have diabetes, to take part. To find out more, please contact the researchers at memory@imperial.ac.uk or call them on 0208 383 3704.

 

The PASTIS trial: Finding out whether tadalafil has the potential to treat a common cause of vascular dementia

This trial is finding out whether the drug tadalafil, already licensed for use in erectile dysfunction, can improve blood flow to the brain in people with small vessel disease. This may have the potential to treat a condition that can lead to vascular dementia. The trial is taking place at St George's University Hospital, South West London.

Please see our webpage on the study for eligibilty criteria and how you can contact the researchers

 

Non-clinical studies for people with dementia

 

Who to tell, how and when?

The aim of our Alzheimer's Society funded research study is to develop and deliver a programme to support people living with dementia who are fearful of disclosing their diagnosis to others. We are consulting with people living with dementia, their supporters (e.g. carers, family, friends) and members of the public who are not affected by dementia, to understand their views on disclosing a diagnosis of dementia. By participating in this consultation, you guide the direction of our research.

You can find the survey here.

If you have any questions about this public consultation or study please feel free to contact:
Jem Bhatt
Research Department of Clinical Educational and Health Psychology
University College London
Direct Telephone: 020 7679 8275
Email: Jemini.bhatt.15@ucl.ac.uk 
 

 

TIHM for dementia

The TIHM (Technology Integrated Health Management) for dementia study is trialling the use of technology to help clinicians and healthcare professionals to monitor people's well-being remotely. The technology would allow the clinical teams to take appropriate action if any alerts are raised.  The aim of the study is to show how this type of monitoring using the technological devices installed into the homes of participants may help to keep people living with dementia at home for longer and reduce hospital stays.  The study will also evaluate the impact on carers.  

The study is only open to people living in Surrey or NE Hants at this time.  To take part, you need a confirmed diagnosis of mild or moderate dementia - this will be confirmed by an MMSE test as part of the study. Participants will need to be living independently (not in assisted housing or care homes) and they must have a carer who is also willing to sign up to the study although they do not need to be a live-in carer.  

Participants will take part in the trial for a 6 month period. 

To express your interest in this study, please fill in the form on the website.

If you would like to talk to someone about the study, please  call 01932 722247 or email tihm@sabp.nhs.uk

 

The ANGELA project: Supporting younger people with dementia

Researchers from University College London and the Universities of Bradford, Northampton and Surrey are running the Angela project, which is aiming to improve diagnosis and support after a diagnosis for younger people with dementia, families and supporters. The Angela Project is dedicated to Angela, a lady with young onset dementia who went undiagnosed for 3 years before her symptoms were recognised. 

Currently, many younger people living with dementia and families receive limited services and support in the UK throughout the time they live with dementia. The researchers want to understand how to improve support for younger people with dementia, families and supporters. From this work, we will produce information and guidance on best practice in diagnosis and post diagnostic support, which can inform others who seek to develop effective services. 

If you live with a diagnosis of dementia, which was received before you reached the age of 65; or if you are related to, or supporting someone with a diagnosis of young onset dementia; we are inviting you to complete a survey.  You can complete it online by following this link; https://bradford.onlinesurveys.ac.uk/the-improving-support-and-service-use-survey
 

Or, alternatively you can complete it on paper by contacting us:

Vasileios Stamou, V.Stamou@bradford.ac.uk
Tel. 0127 423 3994            
School of Dementia Studies                  
Horton A Building                                 
University of Bradford
Richmond Road                         
Bradford BD7 1DP 

The survey will close on September 1 2018.     

We would welcome enquiries if you would like to find out more about the research.

 

Studies for carers or family members

How do children of people with dementia manage risk?

This study as part of our Doctoral Training Centre at the University of Southampton is looking into how sons and daughters perceive and manage risk for their parents with dementia. Participants will be asked to write about their experiences of risk and safety for their parents with dementia (both past and present) and then discuss them further with the researcher.

Potential participants must be aged 18 years or older and currently be providing care or support to a parent who lives in their own home or the home of a family member (i.e. not residential care).

Participants can get involved either face to face with the researchers if they live in the Hampshire area or by Skype.

For further information contact Amelia Abbott on aca1g15@soton.ac.uk

Recruitment for this study will end in November 2017.

Genetics studies

100,000 Genomes

This study is aiming to understand more about the genetics of dementia. The researchers are looking for people with a diagnosis of dementia that was made before the person was 60 years old, or people who have dementia and had or have a close relative (parent, grandparent or sibling) with the same type of dementia. 

 

Thank you for your interest in helping with important research. If you have any questions please contact us at research@alzheimers.org.uk

Other studies

Caregiving HOPE

We are funding a study that is investigating how willingness and obligation to care for someone with dementia affects the carer over time.

The researchers are looking for people who are not currently caring for a person with dementia to fill in a short survey about how willing and prepared they feel to care for a person in the future. 

The results of this project will help us to understand how to prepare people as much as possible for taking on a caring role. 

The survey is open to anyone over the age of 18 who lives in the UK and is not currently caring for a relative with dementia.